Search found 1925 matches

by NF52
Wed Mar 27, 2024 9:37 am
Forum: Our Stories
Topic: 24 and 4/4
Replies: 6
Views: 100

Re: 24 and 4/4

Hi all, I’m really really sad to be joining this forum. I found out today that I’m 4/4 for APOE4 and have no idea where to start. I’m 24, just graduated college, I have no family history of dementia or AZ (I did lose my grandfather in his late 60s to a heart attack though, so there’s some cardiac b...
by NF52
Tue Mar 26, 2024 7:20 am
Forum: Our Stories
Topic: NEW LIKELY CAREGIVER HERE.
Replies: 12
Views: 240

Re: NEW LIKELY CAREGIVER HERE.

Hi Nancy! I am following your advice and looking at joining the website. I know I am going to sound out of bounds, but the $75 monthly costs to locate the trained person in my area might be tough. I get that this is life or death. That is what also makes it somewhat astonishing that there is a fee ...
by NF52
Tue Mar 26, 2024 5:11 am
Forum: Prevention and Treatment
Topic: Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD
Replies: 2
Views: 111

Re: Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD

Thanks for sharing this! Over the years I've wondered why clinical trial results were so unclear most of the time, compared to the earlier studies in animals or cell cultures, where the results are usually clear. Sample sizes, I suppose, and the fact that animals cooperate better, and can't drop ou...
by NF52
Mon Mar 25, 2024 9:05 am
Forum: Our Stories
Topic: NEW LIKELY CAREGIVER HERE.
Replies: 12
Views: 240

Re: NEW LIKELY CAREGIVER HERE.

That is being considered as well. Thanks Not sure how to look. Know of anyone near 76001 which is Dallas/Fort Worth Texas? Thanks for the comment. Hi again, If you want to consider someone trained in the Bredesen protocol in the Dallas/Fort Worth area, you have a few options. You can use the search...
by NF52
Mon Mar 25, 2024 8:33 am
Forum: Prevention and Treatment
Topic: Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD
Replies: 2
Views: 111

Methylene Blue: OLE results from Lucidity Trial at Lisbon AD/PD

The newest issue of Alzforum has an article on the presentation of results from the open-label extension of the Lucidity trial of HMTM, a derivative of methylene blue, at the March 2024 AD/PD conference in Lisbon. Here's the article and an excerpt: TauRx Parses Subgroups to Make the Case for Methyle...
by NF52
Sun Mar 24, 2024 5:58 pm
Forum: Our Stories
Topic: NEW LIKELY CAREGIVER HERE.
Replies: 12
Views: 240

Re: NEW LIKELY CAREGIVER HERE.

My wife was recently diagnosed with EOAL. Age 54, and height/weight lean and for the most part healthful. We were doing basic testing with a Neurologist over a few years and he leaned towards depression. Now at UTSW in which test results have confirmed. The lumbar tests resulted in high PTAU and a ...
by NF52
Fri Mar 22, 2024 11:18 am
Forum: Getting Started
Topic: APOE4/4 makes it to age 86!
Replies: 9
Views: 223

Re: APOE4/4 makes it to age 86!

Bruxism is characteristic of very late stage ALZ which is consistent with her being on Aricept for about 8 years now. She was deemed "un-testable" for cognitive testing when we brought her in a few years ago. I'm curious if she's had a recent MRI of her brain...Given that your mom is a 4/...
by NF52
Thu Mar 21, 2024 11:14 am
Forum: Prevention and Treatment
Topic: The new P-tau 217 test is almost here
Replies: 8
Views: 471

Re: The new P-tau 217 test is almost here

Hello - I am curious if anyone has any additional information on Lucent's p-tau 217 test? It appears to be available through a physician's order? Not direct to consumer. Please see link? https://www.lucentdiagnostics.com/about-lucentad/ Hi Sheri, I'm not directly familiar with the Lucent AD p-Tau 2...
by NF52
Mon Mar 18, 2024 6:34 am
Forum: Prevention and Treatment
Topic: Periodontitis / Gingivitis / Gum Disease in E4/E4
Replies: 10
Views: 384

Re: Periodontitis / Gingivitis / Gum Disease in E4/E4

Hi HennDJM (and all struggling with this issue!), I’m sorry for your periodontal challenges. My dear husband who was diagnosed with MCI in 2019 has suffered with repeated bouts of periodontal disease as long as I have known him (1999)! He’s had numerous invasive and expensive procedures and the pro...
by NF52
Sun Mar 17, 2024 6:55 am
Forum: Getting Started
Topic: 54 year old APOE 4/4. What can I do to delay dementia at my age?
Replies: 8
Views: 304

Re: 54 year old APOE 4/4. What can I do to delay dementia at my age?

I've never been in bad shape I think but I started really taking care of myself when I was in my late 40s. I changed to a mediterranean diet, started working out like an animal and lost about 50 lbs. I feel great and at my age I'm dumbfounded at the muscle I've put on. My lipids, BP, A1C, etc are a...