Search found 45 matches

by Rainy
Sun Mar 12, 2023 1:34 pm
Forum: Our Stories
Topic: "Well-Being with Dementia: Help, Hope and Inspiration"
Replies: 1
Views: 910

Re: "Well-Being with Dementia: Help, Hope and Inspiration"

Wow, what an impactful, kind and actionable book! I scrolled through the free pdf and then ordered this fairly priced paperback book "Pathways to Well-being with Dementia..." for myself and for my daughter-in-law, who is caring for her father with dementia. Especially powerful, as well as ...
by Rainy
Mon Feb 27, 2023 4:17 pm
Forum: Prevention and Treatment
Topic: AHEAD 3-45 STUDY CLINICAL TRIAL (LECANEMAB - BAN 2401)
Replies: 126
Views: 152482

Re: AHEAD 3-45 STUDY CLINICAL TRIAL (LECANEMAB - BAN 2401)

Wow! It feels as though the Berlin Wall of Alzheimer's Disease is falling! Not a perfect analogy by far, but my having looked across the bleak Berlin Wall DMZ at machine gunners in towers decades ago from tiny West Berlin comes to mind, inspiring me to be outspoken about my own E4/4 status and my sc...
by Rainy
Sun Sep 25, 2022 10:54 am
Forum: Our Stories
Topic: New from Canada
Replies: 4
Views: 611

Re: New from Canada

Welcome to this marvelous forum from a fellow Canadian, brave Lebcar! Both of my parents were diagnosed with Alzheimer's in their mid-70s, several years before they died. Many close relatives also died with, but not necessarily due to, dementia. So in my mid-60s I signed up for 23andme testing. As a...
by Rainy
Sat Aug 21, 2021 2:31 pm
Forum: Prevention and Treatment
Topic: New Bredesen Podcast Available August 23, 2021 after August 21 Broadcast
Replies: 1
Views: 680

New Bredesen Podcast Available August 23, 2021 after August 21 Broadcast

Hello, dear ApoE4 friends, Please forgive me if this is already posted elsewhere on the site. Feel free to re-post and/or delete as appropriate! See Show 1269: How the First Survivors of Alzheimer’s Saved Their Brain for an interview with internationally recognized Alzheimer's expert Dr. Dale Bredes...
by Rainy
Sat Feb 27, 2021 4:36 pm
Forum: Science and Research
Topic: Covid vaccine safety for 4/4’s?
Replies: 50
Views: 14491

Re: Covid vaccine safety for 4/4’s?

Hooray and thanks or all the good news and vaccination stories! My husband and I had our second dose of Pfizer 10 days ago, with just sore arms, a bit of dizziness and mild chills that night. SO relieved to be building our immunity and feeling safer from severe COVID - or death, especially hearing s...
by Rainy
Fri Oct 09, 2020 8:32 pm
Forum: Our Stories
Topic: New here. Should I get tested?
Replies: 5
Views: 2068

Re: New here. Should I get tested?

Hello, Apollos, and welcome to this terrific forum! With apologies for this belated message, I would like to inject a clear note of caution on the question of getting tested yourself in your early 30s. After caring for my parents with Alzheimer's for several years each, I definitely wanted to unders...
by Rainy
Wed Aug 26, 2020 8:12 pm
Forum: Science and Research
Topic: 4 drugs which may get approval in 3-5 years
Replies: 3
Views: 2646

Re: 4 drugs which may get approval in 3-5 years

Wow!!!! Sign me up for the 4th drug, ALZ-801, which is administered orally and is getting ready for its Phase 3 trial. Many thanks to NF52 for the very readable and encouraging news! I have been joining a few interesting studies myself lately, including a Lipid MRI study next week that involves drin...
by Rainy
Wed Jan 22, 2020 10:56 pm
Forum: Prevention and Treatment
Topic: Strawberries and 34% lower risk of AD in Rush Memory Cohort
Replies: 15
Views: 5417

Re: Strawberries and 34% lower risk of AD in Rush Memory Cohort

This thread is my hands-down forum favorite! I relish all the information sharing, the brilliant arguments presented, the clearly strong personalities, the underlying good humor and respect for differing conclusions and decisions, and the brave journey to brain health each one of us undertakes anew ...
by Rainy
Fri Nov 15, 2019 9:15 pm
Forum: Our Stories
Topic: Any danger in sharing APOE e4/e4 status
Replies: 7
Views: 2975

Re: Any danger in sharing APOE e4/e4 status

Hoo boy, this is a subject near and dear to my extremely risk-averse heart! I have told my children absolutely not to get tested with 23andme or any related service. Our health records are increasingly centralized and open to hacking, as recent breaches have shown. At some point in the near future I...
by Rainy
Fri Nov 15, 2019 8:36 pm
Forum: Our Stories
Topic: My aunt just died of Alzheimer’s
Replies: 17
Views: 5707

Re: My aunt just died of Alzheimer’s

Dear Brain, I just now saw your post and want to add my heartfelt condolences on the loss of your wonderful, smart and beloved Aunt Rosemary. She clearly lived life on her own terms and fiercely loved her connection with you and the rest of her family. Having cared for both of my parents and helping...