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by Daymoo
Mon Dec 30, 2019 12:34 pm
Forum: Prevention and Treatment
Topic: Experiences with Low Dose Naltrexone
Replies: 84
Views: 15505

Re: Experiences with Low Dose Naltrexone

So far my FM pain has been worse overall since starting LDN. The one improvement that keeps me going is gut motility. I read the Pheonix Rising posts and see that some people don’t tolerate this drug. I suppose I’m not willing to give up yet—so much promise! But does anyone here know whether or not...
by Daymoo
Mon Dec 30, 2019 12:15 pm
Forum: Prevention and Treatment
Topic: Experiences with Low Dose Naltrexone
Replies: 84
Views: 15505

Re: Experiences with Low Dose Naltrexone

Tincup wrote:
Daymoo wrote:I am jumping in here late... maybe I missed it but I don’t see the link to
The Facebook group, and I searched on Facebook for it with no luck.


This is a private FB group, Low dose Naltrexone (LDN) for chronic illness & infections, I've not yet joined.


Thanks much !
by Daymoo
Sat Dec 28, 2019 10:31 am
Forum: Prevention and Treatment
Topic: Experiences with Low Dose Naltrexone
Replies: 84
Views: 15505

Re: Experiences with Low Dose Naltrexone

I am jumping in here late... maybe I missed it but I don’t see the link to The Facebook group, and I searched on Facebook for it with no luck. I have gradually raised my dose from .25 to 1 mg. The night of the first .75 mg dose, I had tremors and sweats that were mild— I thought it was because I was...
by Daymoo
Sat Oct 12, 2019 7:45 pm
Forum: Prevention and Treatment
Topic: Mold and mycotoxins
Replies: 115
Views: 21185

Re: Mold and mycotoxins

Reviving this thread with a question: I heard in an email from Great Plains that taking glutathione for the week prior to collecting a urine sample skews the reports either up or down??? This has been the recommended way of collecting, and I did it consistently over two samples. My first sample was ...
by Daymoo
Sun Sep 01, 2019 11:12 pm
Forum: Prevention and Treatment
Topic: Antibiotics helping with brain fog
Replies: 5
Views: 1124

Re: Antibiotics helping with brain fog

I am 3/4 and have struggled with brain fog/ brain fatigue. I was also diagnosed with hydrogen SIBO. Rifaxipim didn’t seem to help at the time. Diet changes (FODMAPS) helped somewhat. I truly wonder if there is a connection. I also have had in the past dysautonomia of unknown origin. Symptomless but...
by Daymoo
Fri Aug 30, 2019 12:13 pm
Forum: Prevention and Treatment
Topic: Neurontin and immune function
Replies: 3
Views: 645

Re: Neurontin and immune function

Just reviving this msg— Id love input from anyone on the immune effects of Neurontin .
by Daymoo
Wed Aug 28, 2019 2:46 pm
Forum: Practitioner Reviews
Topic: Ann Hathaway / Marin County, CA
Replies: 7
Views: 4082

Re: Ann Hathaway / Marin County, CA

I am due to see Dr. Hathaway soon and am feeling nervous about it for two reasons: 1. She has no place for me to recline or lie down during intake, though she is ostensibly an expert in Chronic Fatigue Syndrome. 2. I totally bombed the keto diet: massive dehydration despite doing all the electrolyt...
by Daymoo
Wed Aug 28, 2019 2:43 pm
Forum: Practitioner Reviews
Topic: Sunjya Schweig, MD / Berkeley, CA
Replies: 10
Views: 4152

Re: Dr. Sunjya Schweig/Berkeley, CA

Unfortunately, it's quite difficult to get an appt. to see him. Hi Julie, How long did it take for you to get an appointment? I was told that his waiting list is now two years long and that they are not even adding to the list! I was referred to his clinical associate at the CCFM, Dr. Asfour, for h...
by Daymoo
Wed Aug 28, 2019 12:29 pm
Forum: Prevention and Treatment
Topic: Klonopin and CFIDS/epilepsy
Replies: 2
Views: 687

Re: Klonopin and CFIDS/epilepsy

Daymoo, are you on clonazepam for epilepsy? I see Cheney's website/book is quite old. 2001. He also uses doxepin which wouldnt be my choice in dementia prevention or in the elderly, its rather sedating. Chronic fatigue is poorly understood and there are many competing theories. None are proven with...
by Daymoo
Sun Aug 18, 2019 8:30 pm
Forum: Prevention and Treatment
Topic: Klonopin and CFIDS/epilepsy
Replies: 2
Views: 687

Klonopin and CFIDS/epilepsy

Hello, I've been researching the studies on Klonopin and dementia, and I'm not surprised to find the findings contrast with Paul Cheney's discussion of the neuro protective qualities of Klonopin. https://www.prohealth.com/library/dr-paul-cheney-discusses-the-benefits-of-klonopin-19834 Does anyone kn...

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