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by NF52
Sat Dec 12, 2020 12:37 pm
Forum: Science and Research
Topic: Post-Baseline SPECT results
Replies: 2
Views: 299

Re: Post-Baseline SPECT results

My SPECT scan shows no neurological degeneration. What does that mean given the fact I was on the protocol for 18 months before I was able to get it done? ... I had no baseline SPECT done and I don't know what the implications of that are with respect to the result. What exactly does the result mea...
by NF52
Sat Dec 12, 2020 7:17 am
Forum: Our Stories
Topic: TREM4 & APOE4
Replies: 4
Views: 560

Re: TREM4 & APOE4

Hi, Anyone here got both? Is it common? Had severe anxiety since my Father passed with Dementia back in September convincing myself that I could see many of the symptoms which he had in myself, decided to take the leap of faith and undertake a 23&me to see if I was at increased risk and bang AP...
by NF52
Thu Dec 03, 2020 8:49 pm
Forum: Announcements and Events
Topic: Invitation to Participate in Research Study (Brief Survey)
Replies: 3
Views: 370

Re: Invitation to Participate in Research Study (Brief Survey)

Hello! We are a research team at the University of Michigan conducting a study on direct-to-consumer genetic testing (e.g. 23andMe) for Alzheimer's disease. We want to hear from you to learn more about your experiences with this type of testing. Please click the link below to take our survey and en...
by NF52
Mon Nov 30, 2020 1:29 pm
Forum: Our Stories
Topic: Anxiety and APOE4
Replies: 16
Views: 5154

Re: Anxiety and APOE4

Checking back in - would love to reconnect. Feeling triggered, anxious and sad today. A big hug, Nikki. Something about grey November days (and frankly, the demands of holidays) that can make looking for sunny skies and rainbows really tough. I saw your earlier post and replied to it here: Anxiety ...
by NF52
Mon Nov 30, 2020 11:57 am
Forum: Our Stories
Topic: Anxiety
Replies: 4
Views: 730

Re: Anxiety

I came to grips with my 4/4 gene makeup and sort of placed it on the back burner and forgot about it. I came across something recently that said the risk of earlier onset is higher and that we have an up to 90% risk of developing AD. My youngest children are 4 and 6 (I’m 47) and I’m beside myself w...
by NF52
Mon Nov 23, 2020 6:08 am
Forum: Prevention and Treatment
Topic: Celebration Thread! Biogen is going to the FDA with Aducan.
Replies: 356
Views: 24229

Re: Celebration Thread! Biogen is going to the FDA with Aducan.

I wish there was a way to determine the safety sooner. As J11 notes, and as I did also, there are several other promising drugs being tested on people with MCI. In addition, just last week I watched a conference talk which showed positive cognitive and behavioral effects from aerobic exercise in pe...
by NF52
Sun Nov 15, 2020 12:02 pm
Forum: Prevention and Treatment
Topic: Hormone Replacement Therapy E4 Women
Replies: 724
Views: 193205

Re: Hormone Replacement Therapy E4 Women

Hi RenLets, Thanks so much! Can you link me to the HRT thread? I thought this was the one. Thanks again! Welcome, UFGirl! I am one year older than you and carry two copies of ApoE4, so know that for our generation, the question of hormones is of high interest--and considerable variation in approach...
by NF52
Tue Nov 10, 2020 6:09 pm
Forum: Prevention and Treatment
Topic: Celebration Thread! Biogen is going to the FDA with Aducan.
Replies: 356
Views: 24229

Re: Celebration Thread! Biogen is going to the FDA with Aducan.

NF52, the FDA briefing document mentioned that as of June 2020 only 120 are receiving treatment in the aducan extension trials. Is that accurate? Only 120? My thinking was that the patients from these trials could be brought back to the clinic and their rate of decline since ending treatment determ...
by NF52
Mon Nov 09, 2020 6:18 pm
Forum: Prevention and Treatment
Topic: Celebration Thread! Biogen is going to the FDA with Aducan.
Replies: 356
Views: 24229

Re: Celebration Thread! Biogen is going to the FDA with Aducan.

Hi NF52: This is all well for people that are healthy but some people are desperate to try something that might work. I do know that science works slowly but boy, I cannot help but feel very angry at this turn of events. I have a brother that has MCI for the last 2 years and he's been kept stable w...
by NF52
Mon Nov 09, 2020 4:30 pm
Forum: Prevention and Treatment
Topic: Celebration Thread! Biogen is going to the FDA with Aducan.
Replies: 356
Views: 24229

Re: Celebration Thread! Biogen is going to the FDA with Aducan.

More: Expert panel votes down Biogen’s Alzheimer’s drug, and rebukes the FDA in the process Thanks for linking to this Julie; here's one of the quotes from it that I think shows researchers taking great care in drug approval recommendations: Joel Perlmutter, a neurologist at Washington University S...

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