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by Anna
Wed May 16, 2018 10:03 am
Forum: Our Stories
Topic: APOE mismatch Ancestry vs 23andMe
Replies: 25
Views: 8781

Re: APOE mismatch Ancestry vs 23andMe

Anna: I'll ask Promethease. I was wondering if the excess E4 is due to a higher risk group taking the test compared to the general population. That's an interesting thought. This would make sense if those with AD in their family were doing 23andMe testing specifically to determine their risk. I wou...
by Anna
Tue May 15, 2018 1:05 pm
Forum: Our Stories
Topic: APOE mismatch Ancestry vs 23andMe
Replies: 25
Views: 8781

Re: APOE mismatch Ancestry vs 23andMe

Hi Anna and Epsilon?, This question of Ancestry calling a result ApoE 3/3 and 23& me calling it ApoE 3/4 or 4/4 has come up before. Here's a link to that thread from January 2018. epsilon 33, 34, 44 - whatever- what difference does it make???? . . . For what it's worth, I and several people I k...
by Anna
Tue May 15, 2018 11:02 am
Forum: Our Stories
Topic: APOE mismatch Ancestry vs 23andMe
Replies: 25
Views: 8781

Re: APOE mismatch Ancestry vs 23andMe

That's really interesting. I don't know how to advise you, except that it's worth considering that your wife may not want the result in her medical record (a potential reason to avoid testing through a doctor). I recently re-ran my 23andMe results through Promethease and noticed that they added that...
by Anna
Mon May 14, 2018 1:46 pm
Forum: Our Stories
Topic: Here I go again-newbie introduction
Replies: 13
Views: 3546

Re: Here I go again-newbie introduction

Jill, welcome to this forum! As a hypothyroid patient (diagnosed with Hashimoto's about 30 years ago), what jumps out at me in your story and labs is your thyroid function, so I'm going to jump right into that: I still felt like I didn't have great energy unless I had a burst from caffeine. I felt l...
by Anna
Tue May 01, 2018 3:01 pm
Forum: Our Stories
Topic: Age 36 and terrified of being 4x4
Replies: 47
Views: 11005

Re: Age 36 and terrified of being 4x4

Anna thank you for taking the time to write that to me, I woke up today feeling high terror again so it was comforting to read your message through a few times as I tried to soothe and talk myself down a bit. You're welcome! I'm glad it helped. I had this thought that maybe this unexpected 4/4 news...
by Anna
Sun Apr 29, 2018 11:09 pm
Forum: Our Stories
Topic: Age 36 and terrified of being 4x4
Replies: 47
Views: 11005

Re: Age 36 and terrified of being 4x4

Priya, I love the idea of using this post as a journal, which I'm sure will help many readers. And I am impressed by all the excellent steps you have already taken. I believe that these changes will not only tame those e4, alleles; they will also move you closer to your goal of having a baby -- and ...
by Anna
Tue Apr 24, 2018 11:42 am
Forum: Our Stories
Topic: 33 year old 4/4 - big shock and struggling to process it
Replies: 20
Views: 4957

Re: 33 year old 4/4 - big shock and struggling to process it

I will have a look for that book today. Do you recommend reading it right away? I'm really glad to hear you have a new perspective on it all now and it really gives hope to us who are this side of the path. Time will no doubt help! I do recommend at least ordering the book right away, but I persona...
by Anna
Tue Apr 24, 2018 11:27 am
Forum: Our Stories
Topic: Age 36 and terrified of being 4x4
Replies: 47
Views: 11005

Re: Age 36 and terrified of being 4x4

Thank you, I’m sorry you share my experience but glad to know I am not alone. It really helps. I also have hashimotos. My antibodies are good but TSH s little high so taking Levo. Ref Promethease I think you are right, I’m not ready and when I am I don’t think I can do it alone. I have applied for ...
by Anna
Mon Apr 23, 2018 12:04 pm
Forum: Our Stories
Topic: 33 year old 4/4 - big shock and struggling to process it
Replies: 20
Views: 4957

Re: 33 year old 4/4 - big shock and struggling to process it

Welcome Ajwilliams11. You have definitely come to the right place. And no worries about what you consider to be a "negative post." That's what we are here for. Many of us 4/4's were blindsided and completely devastated by the news. I was. I felt like I was grieving a death, except, like yo...
by Anna
Sun Apr 22, 2018 11:22 pm
Forum: Our Stories
Topic: Age 36 and terrified of being 4x4
Replies: 47
Views: 11005

Re: Age 36 and terrified of being 4x4

I just feel this overwhelming fear right now, I don’t want to spend the next 30 years feeling like I’m trapped in a time bomb which is how it feels today. I just keep crying and then thinking dark thoughts like what’s the point of trying for a baby etc?! . . . I’m usually very upbeat but this has f...

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