Search found 153 matches

by Anna
Tue Feb 06, 2018 9:20 pm
Forum: Our Stories
Topic: new to the group
Replies: 9
Views: 3311

Re: new to the group

Welcome, Stacia! I am also 4/4. I found out just over a year ago. You are right that this group is super supportive and knowledgeable. It sounds like you also have a supportive husband, which is awesome. Lately though, there has been so much information it is both encouraging and overwhelming. This ...
by Anna
Sat Jan 27, 2018 5:54 pm
Forum: Our Stories
Topic: Siblings
Replies: 20
Views: 7278

Re: Siblings

Hi Liberty. I too am 4/4, and my mom is 3/4. I have a sister who knows both of these results but does not want to know hers. Knowing how much it upset me to learn the extent of my risk, she would rather take the approach that chances are she has at least one copy while hanging onto the hope that she...
by Anna
Fri Jan 26, 2018 11:27 am
Forum: Our Stories
Topic: Hello! I'm a brand new 4/4 member, scared but relieved and grateful to find you all!
Replies: 29
Views: 10720

Re: Hello! I'm a brand new 4/4 member, scared but relieved and grateful to find you all!

I love how you keep the APOE4 gene in perspective. There's a whole world out there, and a whole new day to celebrate life. Thanks for the reminder. Searcher, that's exactly it. Maintaining perspective is difficult but necessary. In some ways knowing my 4/4 status makes it more difficult to have per...
by Anna
Thu Jan 25, 2018 10:54 pm
Forum: Our Stories
Topic: Hello! I'm a brand new 4/4 member, scared but relieved and grateful to find you all!
Replies: 29
Views: 10720

Re: Hello! I'm a brand new 4/4 member, scared but relieved and grateful to find you all!

Welcome, Rainy. I too hit the 4/4 jackpot and discovered my status just over a year ago at a similar stage of life. It's one thing to know, based on family history, that you have increased risk; it is quite another to suddenly find yourself staring at those two shiny ApoE4's. My head was spinning as...
by Anna
Thu Jan 25, 2018 8:30 am
Forum: Our Stories
Topic: Processing Promethease (newbie intro)
Replies: 21
Views: 7736

Re: Processing Promethease (newbie intro)

Thank you Jan :) Unwritten future will be my guiding thought today.
by Anna
Wed Jan 24, 2018 6:32 pm
Forum: Our Stories
Topic: Processing Promethease (newbie intro)
Replies: 21
Views: 7736

Re: Processing Promethease (newbie intro)

Thanks Julie. That's just it; the knowing results in a huge personal transformation. It has been painful, but it has also enabled a paradigm shift. I'm not quite at the point you describe of squeezing in the living, but I have a lot more clarity about what is important. On the days that my mind goes...
by Anna
Wed Jan 24, 2018 1:23 pm
Forum: Our Stories
Topic: My mom has Apo-ε3/ε4, but she doesn't want to know
Replies: 8
Views: 3038

Re: My mom has Apo-ε3/ε4, but she doesn't want to know

In a way, most of us have a similar ethical dilemma. And those of us who are homozygous for ApoE4, by definition, also learned at that same moment that we learned our own status that both of our parents and all of our children have at least one copy of E4 (and our siblings are more likely than not t...
by Anna
Wed Jan 24, 2018 1:04 pm
Forum: Our Stories
Topic: Processing Promethease (newbie intro)
Replies: 21
Views: 7736

Re: Processing Promethease (newbie intro)

Thanks Floramaria :)
by Anna
Wed Jan 24, 2018 12:12 pm
Forum: Our Stories
Topic: Processing Promethease (newbie intro)
Replies: 21
Views: 7736

Re: Processing Promethease (newbie intro)

Well, it has been just over a year since my last post. I intentionally decided to give it a year so that I could come back to this group after having had time to digest the 4/4 status and become educated about it at my own pace. I am picking up exactly where I left off because I noticed that quite a...
by Anna
Tue Jan 10, 2017 10:14 pm
Forum: Our Stories
Topic: Processing Promethease (newbie intro)
Replies: 21
Views: 7736

Re: Processing Promethease (newbie intro)

Stavia, you're right; it's terrifying! If I wasn't so worried about the impact on my family, I might have curled into a fetal position too. I'm not sure why, but I'm already making progress. Yes, I'd do almost anything to ditch one of those ApoE4's; it's on my mind almost constantly; and sleep has b...