URGENT: Biomarker Study Opportunity for ApoE4.Info Members

Including yourself, how many people from your family do you think are likely to enroll?

Poll ended at Fri Apr 05, 2019 5:52 am

0
2
2%
1
81
68%
2
28
24%
3
8
7%
4
0
No votes
 
Total votes: 119

NF52
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Re: URGENT: Biomarker Study Opportunity for ApoE4.Info Members

Postby NF52 » Sun May 05, 2019 1:10 pm

Laddvan wrote:Hi Julie. I'm new to the site, and missed the poll. Is there any update on the biomarker study? I recently learned of my 4/4 status and have found this site to be a wonderful resource. Thank you.
Welcome, Julie! I see that TheresaB, a Moderator and source of deep wisdom on many ApoE-4 related topics, has already given you suggestions on a ketone meter.

So I'll jump in with reassurance that you haven't missed the study, which is still in the development stage. The poll was seeking interest in a study, so those who responded are not committed to joining any eventual study, and those who did not respond have not missed the opportunity.

You mentioned in your other post that you are ApoE 4/4 and still adjusting to that. Welcome to the club of people who learn more than they ever thought they would need to about ApoE 4! You also say that you are "asymptomatic", which is great! At 67, I can thankfully say that also, and know of people on this site in the 70's and 80's with ApoE 4/4 who can say the same. So as you search for information, be sure not to believe everything you read! Some articles that were written more than 20 years ago about small populations in memory care clinics are still being cited today as if they are applicable to populations that are far more diverse and are not making appointments with a memory center!

If you are between the ages of 55-75, you may be eligible and interested in clinical studies, which include "observational" ones, which measure various biomarkers and/or cognitive areas over time and "interventional", which study responses between a control group which has a placebo or no intervention and a randomly assigned group may have a dietary or exercise intervention or a preventative study drug. Here are some resources for information on how clinical trials work and how to find them:

Together We Make the Difference! Participate in Alzheimer's and Related Dementias Clinical Research is from the National Institute on Aging (a division of the National Institute of Health

Learn About Clinical Studies is a helpful NIH website, with a tab for searching (try Advanced Search to find studies near you, or of certain types.)

GeneMatch is sponsored by the Banner Alzheimer's Institute and sends a cheek swab for DNA testing, then notifies you of studies for which you may be eligible.

We look forward to having you post on many forums to share your insights and experiences!
4/4 and still an optimist!

Eileen53
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Re: URGENT: Biomarker Study Opportunity for ApoE4.Info Members

Postby Eileen53 » Tue May 14, 2019 9:07 am

Would love to be part of this study. I’m ApoE4/4, aged 65 and live in the UK.

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Davida
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Re: URGENT: Biomarker Study Opportunity for ApoE4.Info Members

Postby Davida » Tue May 14, 2019 2:11 pm

Eileen53 wrote:Would love to be part of this study. I’m ApoE4/4, aged 65 and live in the UK.


Hi Eileen53, and welcome to the Apoe4 community.

Thanks for your interest in the Biomarker Study. Stay tuned for updates, it doesn't look like you missed the opportunity. Since you are a new user you might like to take a look at our Primer written by a physician member. It's a wealth of information on the Apoe4 gene as well as prevention strategies. Also, you may find Wiki useful for more in-depth discussions on topics of interest to you specifically. And when and if you desire, Our Stories is a wonderful spot to share more of yourself.

Please don't hesitate to ask question or chime in at anytime.

Again, Welcome.

Davida
Davida
FMCHC
Reversing Cognitive Decline for Coaches Certification 2018

Eileen53
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Re: URGENT: Biomarker Study Opportunity for ApoE4.Info Members

Postby Eileen53 » Wed May 15, 2019 5:21 am

Thank you Davida, I have begun to explore the site.


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