Fredsbrain wrote:Is this trial still opened? I was diagnosed with mild cognitive impairment by a neurologist after an evaluation by a psychologist several months ago. But I didn't have any scans. Would I have to get a scan thru my neurologist or how can I get one ordered?
Based on 60+ years of having friends named Fred--and of course Fred Rogers--I confess to being sure that you and your brain are wonderful!
The clinical trail Gene Therapy for APOE4 Homozygote of Alzheimer's Disease
is still recruiting, with an update in the National Institute of Health's website just before Thanksgiving: Clinical Trials
If you would like to learn more about the trial, you can contact either of these people at Weill Cornell Medical Center in NYC:
Grace W Mammen, Telephone: 646-962-2672
or email: firstname.lastname@example.org
Denesy Mancenido, Telephone: 646-962-5583
or email: email@example.com
The good news is that you don't need to go get a PET scan on your own, or an MRI. The study organizers will take care of all of that after first having probably a few meetings with you to be sure you want to begin the screening process. I have had both PET scans and MRIs as part of a 2-year clinical trial that is winding up. Everyone is different, but my impression of a PET scan, which is used to determine if we have amyloid beta plaques in our brains (sometimes called being "amyloid positive") was a breeze. It took an IV and 30 minutes of quiet in a darkened room before a quick, almost silent scan. An MRI is more like a NYC construction crew banging around for 30 minutes--annoying, but not painful, especially when your headphones play soft rock, classical, or whatever radio station you choose! In fact, they had to remind me not to fall asleep during one!
I encourage anyone interested in a clinical trial to remember that you are in the driver's seat and your health is paramount! Your informed consent is required before you even start the screening process, and again before you start the actual study, especially because this study does not include a placebo (inactive treatment) and is an early stage study of safety doses.
I hope you keep us posted on how you are doing, Fred.