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An opportunity to participate in an E4 trial

TCat
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Re: An opportunity to participate in an E4 trial

Postby TCat » Sun Oct 05, 2014 9:54 pm

Lilly, in my country there are no laws against genetic discrimination by insurance companies. It is not such a concern for me these days, but I worry about negative effect on my kids and grandkids.

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Re: An opportunity to participate in an E4 trial

Postby Welcomeaboard » Sun Oct 05, 2014 9:57 pm

Hell fire, if they can reverse your status as well as prevent you from contracting AD as their study shows there is nothing to out as you have nothing. At worse, it may be the same as answering did you have a polio shot as a child?

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Russ
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Re: An opportunity to participate in an E4 trial

Postby Russ » Mon Oct 06, 2014 7:26 am

Sorry for slow reply… just busy…

Very much like their overall approach. Light years ahead of others focussed on looking for 'silver bullets.' Count me as interested to learn more. Biggest question will be whether my own continued proclivity for self-experimentation might invalidate we counting in any kind of official trial? Operationally, I would also have a stronger bias on understanding how to get additional nutrients from real food, not a huge array of supplements, but that might fir within their general framework of a protocol tailored differently for different people?
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Eat whole, real, flavorful food - fresh and in season... and mix it up once in a while.

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Re: An opportunity to participate in an E4 trial

Postby LanceS » Mon Oct 06, 2014 9:30 am

I am also interested. Nice thoughts Russ.

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Stavia
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Re: An opportunity to participate in an E4 trial

Postby Stavia » Mon Oct 06, 2014 10:09 am

ugh duplicate post via tapatalk...pls ignore...
Last edited by Stavia on Mon Oct 06, 2014 7:16 pm, edited 1 time in total.

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Stavia
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Re: An opportunity to participate in an E4 trial

Postby Stavia » Mon Oct 06, 2014 10:10 am

Russ wrote: Operationally, I would also have a stronger bias on understanding how to get additional nutrients from real food, not a huge array of supplements, but that might fir within their general framework of a protocol tailored differently for different people?


Russ I'm with you here. I have found an intergrative doctor specialist in bioidentical hrt. She asked me in our brief pre appointment phone call if I was taking b vitamins for my homocysteine (9) and I replied that I'd rather eat a bag of lettuce greens every day.

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circular
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Re: An opportunity to participate in an E4 trial

Postby circular » Mon Oct 06, 2014 11:22 am

I find it interesting that neither Alzforum nor the Alzheimer's Association is reporting this study in their News (http://alzforum.org/all-news and http://www.alz.org/news_and_events.asp). This may be reflective of the comment made in an LA news video about it that researchers are criticizing the work as unscientific. I suspect this is not because it distorts the results, but that each component of the multi-pronged approach hasn't been vetted for safety and efficacy in a decades-long, very large clinical trial. They are not ready to accept that their whole research MODEL and ESTABLISHMENT is inadequate to address Alzheimer's.

I think this is really important to prepare us that our involvement, if Dr. Bredesen brings us in, may be interpreted in the scientific community as an example of how patients seeking answers on the internet get led astray. I'm not suggesting this should influence anyone's decision to take part, just that we should be aware of the context. Unless I am fabricating an issue that isn't there? But it must be if the video mentioned it and major vested parties are ignoring Bredesen's results!

My own initial first impression of this is outrage that egos and vested interests in the field appear to be ignoring a signal of MAJOR importance in the fight against Alzheimer's, most likely because there is little involved in the treatment to benefit pharmaceutical companies and research interests in the vast Alzheimer's research empire, with the potential over time to put a major ding in research funding and jobs. I do think the research community will continue to look for a silver bullet(s) that bypasses lifestyle changes, preferring instead a pharmaceutical cocktail to a lifestyle and supplement cocktail. But Breseden is here and now and a pharmaceutical cocktail isn't. How self-centered are these organizations, existing more to perpetuate themselves???

Maybe our meetup should be on the Mall in Washington, DC?!
ApoE 3/4 > Thanks in advance for any responses made to my posts.

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Re: An opportunity to participate in an E4 trial

Postby Welcomeaboard » Mon Oct 06, 2014 11:33 am

Just make sure your bag of lettuce greens does not contain salmonella or e-coli. Generally, about the time I plan on something they bust out an outbreak in the news and I wipe my brow and say, phew missed that one.

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Re: An opportunity to participate in an E4 trial

Postby circular » Mon Oct 06, 2014 11:41 am

I was hungry when I posted that haha! I wonder if they just never report on anecdotal studies as a matter of science (even Bredesen mentions it is only anecdotal and needs larger studies. I guess I'd understand that - at least for consistency - but it's not much different from reporting on mouse studies as significant.

I wonder if he needs to garner more funding before continuing this research?
ApoE 3/4 > Thanks in advance for any responses made to my posts.

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Re: An opportunity to participate in an E4 trial

Postby Welcomeaboard » Mon Oct 06, 2014 11:48 am

No money no worky? I am not sure what line item that is in the Hippocratic oath.


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