New genes and health study to use FB app to recruit participants
Posted: Tue Mar 31, 2015 10:29 am
"The researchers are keenly interested in markers with medical relevance, and will begin by taking a close look at about 100 genes. Certain genetic variants in the APOE gene, for example, increase the risk of Alzheimer’s disease.
"For now, following recommendations of the project’s ethical review board, the researchers aren’t going to tell study volunteers anything about their genetic risk of disease. Participants will be able to download an encrypted file with all of their raw genetic data, however, and those who are savvy about genetics could dig into their health-related DNA markers.
“There are rogue websites out there” — such as SNPedia — “where you can upload genetic data and get some kind of interpretation back about disease risks,” Scott Vrieze, an assistant professor of psychology and neuroscience at the University of Colorado, Boulder, and co-leader of the new app, told BuzzFeed News."
http://www.buzzfeed.com/virginiahughes/ ... omW3Z5MJrm
If this plan doesn't get stopped by the FDA, I wonder how big this list will get???
"For now, following recommendations of the project’s ethical review board, the researchers aren’t going to tell study volunteers anything about their genetic risk of disease. Participants will be able to download an encrypted file with all of their raw genetic data, however, and those who are savvy about genetics could dig into their health-related DNA markers.
“There are rogue websites out there” — such as SNPedia — “where you can upload genetic data and get some kind of interpretation back about disease risks,” Scott Vrieze, an assistant professor of psychology and neuroscience at the University of Colorado, Boulder, and co-leader of the new app, told BuzzFeed News."
http://www.buzzfeed.com/virginiahughes/ ... omW3Z5MJrm
If this plan doesn't get stopped by the FDA, I wonder how big this list will get???