Thanks for the suggestion, circ!
One of our relatives suggested something similar. They suggested showing our loved one pictures from the past to help reconnect.
This seems like a very good idea. Many on the site understand the importance of creating a cognitively complex environment to maintain
optimal brain functioning when healthy. However, for too many dementia patients, cognitive stimulation ends after they have progressed to
the point of total dependence.
There is always the question of resources. In a typical nursing home environment severe dementia patients might largely be ignored. We interact with our loved one throughout the day. However, if an information technology were available, then our loved one would likely be
surfing and connecting constantly. It would be a much richer more fulfilling life.
It would seem to me that developing these EEG and other technologies would be an easy win for locked in AD patients and others. Even after years of being locked in our loved one still appears to have cognitive abilities. I am sure that if I were in such a circumstance that I want to have a technology that would allow me to surf the web, play video games, and communicate at some level. The technology would need to be fairly simple to interface with, though it would have substantial implications for quality of life for these patients. It would give them back years of their lives. And it would also allow them to reclaim a certain amount of control over their lives.
Our loved one is generally considered vegetative, even by the doctors. It would change everything if there were a technology that would our loved one to interact in a virtual world.
An update on the seizures.
The seizures intensified and we were quite worried about them.
The doctor gave us a prescription for Ativan to control Keppra resistant seizures in case of emergency. (This medication is a controlled substance and identification was required to pick it up from the pharmacy.) It turns out that it was not necessary.
Not long after getting receiving the Ativan prescription, it was noticed that simply making our loved one more comfortable would stop the seizures. For example, a pull up or changing the bed pad. Doing this would stop the seizures for almost a whole day! The doctor now believes these "seizures" were not actually "seizures" but more expressions of pain or discomfort.
It was amazing, though how much of a placebo effect the Keppra gave off. Whenever, the Keppra was given seizures seemed to stop immediately. The Keppra must have acted similar to a Pavlovian conditioner.