Seaweed, I agree with Julie and Stavia on getting a second opinion from a Bredesen-trained doctor.
I gather from what you wrote that your NeuroQuant results didn’t show the “classic” pattern of atrophy in the basal ganglia that Dr. Shoemaker expects to see in a person with mold illness. If you don’t mind me asking, is that the case? Based on my experience, the lack of this pattern doesn’t necessarily mean a person doesn’t have mold illness. I wonder if your hippocampus is low in volume precisely because you have mold and Lyme, as you mention in your signature line. Of course, a Bredesen-trained doctor can investigate what’s going on in your case, perhaps in coordination with your mold doctor.
I recently had a consultation via Skype with Dr. Mary Ackerley to get an interpretation of my NeuroQuant results. She is Shoemaker trained but is now part of the new organization that has formed called ISEAI (International Society for Environmentally Acquired Illness). I have been told that she is one of the best at interpreting NeuroQuant results.
I don’t know about the other doctors in this new organization, but Dr. Ackerley told me that when she started seeing patients’ Triage Brain Atrophy Reports (which came with NeuroQuant 2.0), she found that the Shoemaker scoring for mold vs. Lyme was off. For example, per the Shoemaker scoring, my caudate is atrophied, which would support the fact that I have mold illness. However, when compared to gender- and age-matched controls, my caudate is in the 87th percentile on the left side and in the 91st percentile on the right side. Obviously, I don’t have atrophy there. Dr. Ackerley no longer uses the Shoemaker scoring.
Instead, Dr. Ackerley looks at a patient’s history, symptoms, labs, and she is finding the urine mycotoxins testing to be accurate. She will be (or already has) started to using this testing in her practice. She also looks at MRI radiology reports for mentions of the presence of white matter hypertensities, which, in her experience, indicate mold, Lyme, migraine headaches, or sleep apnea. She said these are especially concerning because they point to leaky brain.
For my consultation, Dr. Ackerley looked at all the brain structures reported on and discusssed my areas of atrophy and asymmetry (between the left and right sides of a particular structure) and possible reasons why, given what she knows about these structures and my history. The consultation was quite informative and went way beyond mold, and I came away with action steps.
I have noticed that Shoemaker-trained doctors who are now part of ISEAI are no longer listed on Dr. Shoemaker’s site as certified practitioners. It looks like they have left the nest.
ApoE 4/4 - When I was in 7th grade, my fellow students in history class called me "The Brain" because I had such a memory for detail. I excelled at memorization and aced tests. This childhood memory helps me cope!