New here? Some Best Practices

Newcomer introductions, personal anecdotes, caregiver issues, lab results, and n=1 experimentation.
Resilientk
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Re: New here? Some Best Practices

Postby Resilientk » Fri Oct 02, 2020 7:02 pm

All: Thank you for your kind and thoughtful replies. I am so overwhelmed.
Renlets: Your words about seeing me and my pain made me cry. Thank you so much!!! That should be what doctors tell patients all the time. I bet that would make a huge difference. And thank you for the resources, I will look through everything.
Tincup: The resources on breathing were quite interesting, thank you so much. Sometimes we forget simple things in the search of a solution.
NF52: You are wonderful, thank you for your feedback. And I commend you on turning your focus on yourself and your family. You can try helping someone, but you cannot do it for them. I had a similar situation with my sibling, but some time ago I sat down, analyzed our whole relationship and realized there is nothing I should feel guilty about, that was a big relief.
I have been upset about the gene finding the last few days, testing my memory, trying to give myself new tasks at work, etc. but decided to give myself a break for now. I have enough reasons for minor memory gaps for now: my mind frequently goes in circles due to anxiety and pain, I have a four year old full of energy, and I have been very uncomfortable with my rigid diet—that’s not forever, I can survive without flavor for a few months :).
I have a Lyme test coming up. If it’s negative, I should stop searching and focus on all the good information you have shared.
Thank you again.
Best,
K

maritimemaid
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Re: New here? Some Best Practices

Postby maritimemaid » Thu Dec 31, 2020 12:48 pm

Thanks for outlining the lifestyle changes and dietary advice. I recently learned of a ApoE4- one copy result in my blood work. I believe that knowledge is power so became pro-active about cognitive decline which led me to the Bredesen ReCode program.
This is a wonderful resource here, and I hope to be able to contribute with my limited knowledge of fatty fish and seafood in general. My husband and I have been commercial fishermen (35-50 yrs) and now run a mom&pop oyster farm.

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lgoring
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Re: New here? Some Best Practices

Postby lgoring » Thu Dec 31, 2020 2:32 pm

maritimemaid wrote:I believe that knowledge is power so became pro-active about cognitive decline which led me to the Bredesen ReCode program.
This is a wonderful resource here, and I hope to be able to contribute with my limited knowledge of fatty fish and seafood in general. My husband and I have been commercial fishermen (35-50 yrs) and now run a mom&pop oyster farm.


Welcome and Happy New Year’s Eve maritimemaid,

I wanted to take a moment to welcome you to the APOE4 community and quickly introduce you to the site.

Some helpful tips and tricks to navigate the site include the How-To Guide. This guide is a great resource I found helpful when I started posting. It includes topics such as navigating the forum, private messaging, and searching. One great tip is using the quote button (") when replying to a post. Using this button will automatically alert the member of your response. It really helps keep the conversation rolling.

The Primer also gives a nice intro about the ApoE4 gene and was written by a physician member of the ApoE4.info community. I’m happy you found the forum and look forward to your contributions about fish and seafood!

If you would like any other tips for navigating the site, feel free to reach out!

All the best,

lgoring
ApoE4/4
Certified Health Education Specialist
Functional Medicine Certified Health Coach

jblake
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Re: New here? Some Best Practices

Postby jblake » Sun Jun 20, 2021 5:56 pm

I am new here. I have not been tested yet. Need to find reputable source. Also one I van afford. I read testing APOF4 genes was $300 but lowered to $99. Where can I find for $99? I am 76 and had very severe head injury in 1983. I have had minor ones since. I have always feared Alzheimer’s. I have had more and more memory confusion. I live in Los Angeles area.

NF52
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Re: New here? Some Best Practices

Postby NF52 » Mon Jun 21, 2021 8:48 am

jblake wrote:I am new here. I have not been tested yet. Need to find reputable source. Also one I van afford. I read testing APOF4 genes was $300 but lowered to $99. Where can I find for $99? I am 76 and had very severe head injury in 1983. I have had minor ones since. I have always feared Alzheimer’s. I have had more and more memory confusion. I live in Los Angeles area.
Welcome, jblake!

We're so glad you found this community and have reached out with a great question. I want to first apologize for taking the liberty of removing your zip code and email from your post. As a Moderator and member of the Admin. Support Team, we want to support the privacy of all of our members, and having your email on a post would make it visible to anyone who read it.

You don't mention why you want to get tested, but might want to read this information on Thinking About Testing [Click on the blue to go to that page.]

If you have an Amazon Prime membership, you can order a 23andme Health and Ancestry test that includes ApoE for $99. ONLY through tomorrow (6/22/21. Here's a link: Amazon Prime: 23&me DNA test

Life Extension also offers a sale on an ApoE test for $ 111.75 here: Life Extension: ApoE Genetic Test.

In both cases, you will be sent a kit with a cheek swab or "spit tube", with instructions on how to take the sample and send it back. Results are usually returned in a few weeks.

Unfortunately, Medicare does not pay for genetic testing like ApoE.

If you have concerns about your memory, language, hearing, balance or other skills, Medicare would probably pay for an evaluation at UCLA Memory Health UCLA also has what looks like great online program for "healthy living" for seniors in the UCLA Longevity Center They include a Memory Training program, Brain Boot Camp and Sharper Mind Series.

Happy Summer from someone who's a few years behind you in age and aware of how much hard work you've put into recovering from a severe TBI years ago. Enjoy having a brain (and a spirit) that doesn't give up!
4/4 and still an optimist!

NoNotMe
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Re: New here? Some Best Practices

Postby NoNotMe » Mon Jun 21, 2021 2:47 pm

Hi Jblake,

Welcome to APOE4. We're very happy you found us. I see you have a thoughtful response from Nancy. She is so knowledgeable and a real expert! As she said, recovering from a severe TBI is quite an accomplishment. I'm very happy for your recovery.

As you gather information I thought you might find the following pages on the site helpful. Here is the Primer which was written by a doctor who is also a member of our community. This is a link to the WIKI page which also has a search function. There is such a huge amount of content here.

Please explore, discover and share your story. We all learn from each other here.

In Best Health!
Erin
Functional Medicine Health Coach
Integrative Nutritionalist


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