Hello APOE4 Forum
Posted: Fri May 06, 2016 3:11 am
Hi there.
I just wanted to say hello. Its great to find this forum, as I have been terrified by my genetics results.
I did a test out of interest, but was quite interested in the AD risk, as I have a family history of AD (Paternal grandmother, had galloping AD) and my Mum, developed early onset AD, in her early 50's (if not before). I thought I would be okay if I had APOE, as the PSEN were the ones I was mostly worried about, with Mum in mind. But I was shocked, when I found the E4!
I am JJ, currently sitting at my desk at work in England on a sunny day!
I have a beautiful baby daughter, she is 18 months old. I am (A4/E3) and many other risk factors.
I feel like I have symptoms already.
I was always sharp, memory in particular, it got me ahead at work etc and I got A's in education etc.
But now, in particular from one minute to the next, I can forget what I was doing, thinking, about to say.
Things like, going to a file on my computer, then having to trace my steps back, to remember what I was going to do.
Forgetting straight away, something I have literally just planned to do.
Words too (probably most concerning for me), I say the wrong words, (calling a yellow bag, white) or not being able to find a word, it makes me nervous socially, as I worry that I will say the wrong thing. It seems to be worse when I'm anxious.
Even if I say the right word, I sometimes don't recognise it, (wonder if it was the right word or not).
I cant trust myself to remember anything at all, so I have lists, notes etc. I can still learn info okay, as long as I process it.
Still okay with faces etc.
I am only 34. So this shouldn't be happening. But my Mum did have signs very early too.
Hubbie thinks I'm paranoid. He is dismissive re: the genes, as says we are all going to die anyway and live for now etc and he doesn't think it really means anything.
I do understand what he means "live for today" etc, but I have such a strong desire to do something about it and I feel so sure that my brain is not working properly already, which he is in denial about.
It makes it hard to try this diet too, as he wants to go out and drink/eat etc.
We don't have a prevention centre in the UK, so I'm just trying to find somewhere to go, to see a clinician. No joy yet.
Thank god for Stavia and that info on here.
PS: I am 5,3 and weigh about 9.5 stone (62Kilos) have never been too bad with sugar, (don't like sweet things) apart from Chocolate. So have moved onto Dark, low sugar now. I do drink a bit (2 beers, (400ml) approx 3 x a week) and then 3 glasses of wine 1 day too. So will cut down on that. Non smoker. Was fit once, starting that again now!
Thank you for listening x
I just wanted to say hello. Its great to find this forum, as I have been terrified by my genetics results.
I did a test out of interest, but was quite interested in the AD risk, as I have a family history of AD (Paternal grandmother, had galloping AD) and my Mum, developed early onset AD, in her early 50's (if not before). I thought I would be okay if I had APOE, as the PSEN were the ones I was mostly worried about, with Mum in mind. But I was shocked, when I found the E4!
I am JJ, currently sitting at my desk at work in England on a sunny day!
I have a beautiful baby daughter, she is 18 months old. I am (A4/E3) and many other risk factors.
I feel like I have symptoms already.
I was always sharp, memory in particular, it got me ahead at work etc and I got A's in education etc.
But now, in particular from one minute to the next, I can forget what I was doing, thinking, about to say.
Things like, going to a file on my computer, then having to trace my steps back, to remember what I was going to do.
Forgetting straight away, something I have literally just planned to do.
Words too (probably most concerning for me), I say the wrong words, (calling a yellow bag, white) or not being able to find a word, it makes me nervous socially, as I worry that I will say the wrong thing. It seems to be worse when I'm anxious.
Even if I say the right word, I sometimes don't recognise it, (wonder if it was the right word or not).
I cant trust myself to remember anything at all, so I have lists, notes etc. I can still learn info okay, as long as I process it.
Still okay with faces etc.
I am only 34. So this shouldn't be happening. But my Mum did have signs very early too.
Hubbie thinks I'm paranoid. He is dismissive re: the genes, as says we are all going to die anyway and live for now etc and he doesn't think it really means anything.
I do understand what he means "live for today" etc, but I have such a strong desire to do something about it and I feel so sure that my brain is not working properly already, which he is in denial about.
It makes it hard to try this diet too, as he wants to go out and drink/eat etc.
We don't have a prevention centre in the UK, so I'm just trying to find somewhere to go, to see a clinician. No joy yet.
Thank god for Stavia and that info on here.
PS: I am 5,3 and weigh about 9.5 stone (62Kilos) have never been too bad with sugar, (don't like sweet things) apart from Chocolate. So have moved onto Dark, low sugar now. I do drink a bit (2 beers, (400ml) approx 3 x a week) and then 3 glasses of wine 1 day too. So will cut down on that. Non smoker. Was fit once, starting that again now!
Thank you for listening x