Thank you all for the replies.
Julie, Thank you for understanding. Not a lot of people out there get FH and I am only learning about it myself these last few months.
Stavia, I do believe that we, as a society, and our medical Dr.s don't always look at the big picture. But I also believe that a persons health history gets lost in the shuffle many times, and that history and their "habits" if not addressed can leave a Dr "guessing" in a way with his/her hands tied. In this way they are unable to make an educated decision on how to help and then our needs are not solved.
I have a long and complicated medical history and its been a journey. I've had to become an advocate for my own health so I can educate my Drs on all that is "Kath". I have created databases of my habits, lifestyle, medical records, past illnesses, family histories, etc so they can see and understand the issues and get a clear view of the problems. But not being a Dr myself, I need some help managing it all sometimes. Its a lot to take in.
Julie with regards to FH, I had no idea it existed till a few months ago. I knew there was a genetic link, but had no idea there was a name, a foundation and resources and Dr.s who understood it. I believed with all that I am, that even despite my family history, this was caused by food and bad habits. Even though I ate better than everyone I knew, I was the girl with the awful numbers.
I've been battling since I was a kid trying to get my cholesterol down. I've been on every diet, food plan etc and even when.. sharing my soul here now... I battled Anorexia and bulimia, my numbers refused to drop.
I have a database from 2012 that compares food, exercise, stress and all the lab scores and I couldn't get these numbers down to save my life. So this last year I did a test, and I was CERTAIN I would pass it. I started following Dr. Conrad Esselstyns Whole foods, plant based, no oil, low fat, low sugar diet for cardiac health. I exercised 30-45 minutes everyday and documented everything.
I event started a little veggie group on Facebook.
Physically I felt great but I was hungry! I wanted more "healthy fats", nuts, avocados, tofu etc but I stayed compliant to make sure the results were accurate.
In one year I lost 30 lbs! But my LDL Dropped a pathetic 18 pts.
I was gutted, defeated and bound to run out and eat a hot fudge sundae.
But I stayed the course and I called Dr. Esselstyn. He listened to my health history and said he stands by his claim that what you put in your mouth can heal your heart, BUT we cant change our genetics and some people need more help. He told me to find a good cardiologist in my city. I found an amazing Dr at a big teaching hospital near me and he specialized in FH as well.
Tests were done, I was diagnosed with FH, and sadly Cardio Vascular Disease. At my young age of 51, I have 90% more plaque than women my age. On one hand I was so upset, but on the other hand I had answers, albeit answers I didn't want.
He put me on a statin, I finally complied and in 6 weeks I dropped 100 pts of my LDL. Great news, but more to go and now the personal frustration of needing these drugs to keep it down. So I am still on a Whole Foods, Plant based, no oil, low sugar diet, BUT I have added in nuts/nut butters and avocados the last week. My body really needs a higher fat content for other health issues but I am concerned that will push my LDL up and make the statin work harder.
My memory has been a big issue for many years but my family and I saw a loss in memory retention this year.
I had some tests run, saw a neurologist and apparently I fall within the MCI boundaries.
I found Dr. Bredesens book by accident and loved it.
Now I am making more changes to my diet and lifestyle by learning the ketoflex plan but I don't eat high fats. Its daunting trying to find my way in this maze of a crazy health history. It would be my goal to go off the statins eventually and if that wont work, then a very minimal amount.
Right now, its one day at a time, tweeking things and hoping for the best result.
Thanks for the support!