CoachDD wrote:Hi everyone - thought I'd jump in on this one since I just completed much of these tests and it is apparent that I suffer from mold toxicity.
I met with my FM/Bredesen trained doc this past week and he questions whether the urine tests are helpful since we constantly circulate and eliminate many of these toxins. His thought is that a positive result may not necessarily be indicative of whether someone is adversely affected by mold toxicity (which I guess makes sense).
I test positive for two of the mold HLA-DR and through my research, found that most agree that about 25% of the population does. The dreaded "multi-susceptible" only affects about 1% of people (including Dr. Jill Carnahan, an IFM and ISEAI.org board member). I also did the swab for the MARCoNS test (awaiting results), but already had the mold "work up" which includes:
VEGF (low: <31 pg/mL - range is 31-86)
C4a (high: 3116 ng/mL - range is 0-2830)
TGF Beta1 (high: 6000 pg/ml - range is 344-2382)
ADH/Osmolality (my ADH was very low at 0.9 /Osmolality was normal at 289 - range is 278-305 mOsm/kg)
MSH (low normal: 8.0 pg/mL - reference range is 0-100.0)
TNF Alpha (within normal range: 0.75 pg/mL - range is 0.56-1.40)
VIP (within normal range: <50 pg/mL - range is <75)
MMP9 (within normal range: 170 ng/mL - range is 0-900)
Also tested low on Zinc: 55 mcg/dL (range is 60-130)
Thanks for sharing this insight. I will be seeking her out for a consultation myself!I had a consultation with CIRS expert Mary Ackerley, MD, during which we discussed my MRI with NeuroQuant results. She is the VP of the new ISEAI organization. She hadn't been ordering the urine mycotoxins tests for her patients, but patients (including me) came with urine mycotoxins test results in hand. So she started looking at them. She has found this test to be very accurate in that it correlates with a patient's symptoms and history of mold exposure (and current exposure, if applicable). She has started using this test in her practice.
Agree! Thanks for pointing this out.I'd suggest checking the ranges that Dr. Shoemaker uses at https://www.survivingmold.com/diagnosis/lab-tests. They differ from typical lab ranges.
Yep - and my copper is low too at 58 mcg/dLHave you had your copper tested? Dr. Bredesen discusses the copper:zinc ratio as part of the toxin-related blood testing. The ratio should be .8–1.2. Ideally, the ratio is 1:1 with about 100 mcg/dl each. So your zinc is definitely low.
This may be the exact reason the FM doc is dismissing my idea of doing the Mycotoxin Urine test at this time. I will keep it on my radar, however.Because my CIRS test results were close to normal (except for MSH, ADH, and TGF Beta 1, the last of which wasn't much above range), I'm using the urine mycotoxins testing to check the status of how my treatment is going. In your case, you have plenty of out-of-range CIRS blood markers. Urine mycotoxins testing might not be worth the expense in your case. However, I personally found it useful to learn which mycotoxins I tested positive for.
CoachDD wrote:Thanks for your insight and support, TheBrain! Actually, I was going to reach out to you directly. . . maybe we can catch again up soon.
Yep - and my copper is low too at 58 mcg/dL
Bettylacy wrote:I just heard from Dr. Shoemaker himself via his office about the HLA question. He said and I quote "Baloney" to not doing HLA testing. In other words, he appears to like food metaphors and be in favor of HLA testing. When I asked where to get tested, they directed me to Lab Corp. I offer my apology for any confusion on this subject.
Interesting I reported that I had 2 VCS failed tests, which both had some ? computer glitches, I suspect on their end. So they credited me for 2 tests and said they had corrected the glitches. I just retook the test and had 1 positive and 1 negative. Could this be because one eye has better vision? Because of these yearly sinus infections, I am going to proceed with testing for the mycotoxin with Great Plains and either do the FIR sauna or the glutathione.
One thing is for sure they really have a great team of online support and have a direct line into Dr. Shoemaker himself. In this day and age that is very refreshing.
FYI-I also tested my zinc(RBC) 1300mcg/dl(normal 794-1470) and copper 78 mcg/dl( normal 80-155). These are upper limits of zinc and lower limits of copper. Would appreciate your thoughts on this...? Lower copper constitutes toxic exposure?
Michelle wrote:I just got my results from the same test. My ochratoxin A result is 122.79, which seems outrageously high ("common range of positive is 4-20"). Two others were also high, but in the common range of high. I've basically felt like crap for years. Is there hope to get rid of this and actually feel better?
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