I have recently enrolled my sister age 58 in RECODE with a Bredesen trained DO who is fantastic. (At some point I will add her name to the Practicioner’s list.) My sister was diagnosed in 2016 with late 1st stage to mid stage AD. Her cognitive scores are in the 3rd percentile for her age, with petscan imaging showing lots of cellular loss in hippocampus and other areas of the brain. She had suffered from depression for 10 or so years before the diagnosis so even though my mother has AD it did not occur to us that she was also developing it. But in retrospect there was much more introversion and lack of curiosity in others or world events than before; she had stopped reading and stopped her acupuncture practice in that period as well. I noticed in the period leading to her diagnosis that she had stopped being able to follow other people’s lives and didn’t seem very interested, so I had greived the loss of that part of her for several years. I had to push quite hard to speed the process of all the blood tests and when the results came in it was clear that she has type 2 atropic as the main cause of her trouble. ( she had 2 surgeries including hysterectomy in her late 40s). It was then that she was most aware of her memory loss, as time went on she sort of accepted it I think and did not mention it as much. She also lost hearing in one ear 3 years prior to her diagnosis. Ironically the same thing happened to my mother at about the same age. I feel the lack of auditory feedback is a big contributor to cognitive decline as well. Three months after starting the process of finding the practioner, testing etc we have finally started her on a hormonal patch and several supplements. She has been doing the diet and exercise for the three months while waiting. Initially when changing to the mildly ketogenic diet we noticed a difference in her energy level. Since then, I suspect the diet has been uneven as she is in assisted living and eats the food there. She chooses the veg and protein, but because of her memory loss I suspect she doesn’t always remember and although the staff is very helpful, they are not true believers and I think they think I am a bit on the crazy side. I have gotten one nurse to read the Bredesen book and will keep trying with the others. I bring food that I cook as often as I can. Sometimes I wish I had told them she was diabetic, and they would be much more motivated to help her with the diet part. The good news is, they give her all the supplements at the prescribed times.
I am very happy to hear that your husband is on the Bredesen protocol with mid Alzheimer’s. My sister has the same symptoms you described your husband as having. Are you doing the diet and exercise along with him? I am committed to it for the rest of my life, in part because AD has been in my family for at least 4 generations. I have just sent off to 23 and me so it will be 6 months or so to find out about our genetics. It will be interesting to hear what the results of your husband’s tests turn out to be. I’m very grateful to have found ApoE 4 website and all the amazing and diverse people on it. And inspired to communicate because of your writing. I look forward to more, and I do feel cautiously optimistic for my sister and your husband. There are so many factors, enough for a book I’m sure, but the factor I am watching in my sister is whether her own commitment and determination will catch fire. So far feel it is all coming from me, but I hope that if she can get a little bit better, slowly she will develop her own will to get better. Thank you for writing, and to everyone on this site.