New here? Some Best Practices

Newcomer introductions, personal anecdotes, caregiver issues, lab results, and n=1 experimentation.
dcox
Support Team Intern
Support Team Intern
Posts: 97
Joined: Sat Aug 04, 2018 4:08 pm

Re: New here? Some Best Practices

Postby dcox » Sat Jan 19, 2019 6:31 pm

Walt47 wrote:Thank you NF52 for your prompt and informative response. I live in Cuenca, Ecuador and have the country's health plan. I have a follow up with the Spanish doctor, who speaks little English, on the 30th but don't think he's going to respond well to my not following his protocol of bad side effect drugs. Thank you for your kindness and understanding.


Welcome Walt
We are excited to have you join us at ApoE4.info. Looks like NF52 has given you some great advice as to your radiology results. Hoping your Dr. will respond better than you anticipate at your follow up appointment. To prepare for that visit here are some areas you might like to explore to gain knowledge about AD and what protocols and lifestyle options may work for you that may help convince your Dr. of the path you wish to take: The Primer is amazing, giving you great information about ApoE4 and the journey to prevention, reversal and stopping AD, one of our of our most active members, Stavia, put it together she is a Dr. and E4/E4 herself, she truly put her heart into writing it; this page will help you learn how to use the site more efficiently "How-To" Get the most out of the ApoE4.info website; and the Wiki Page, is where you will find specific topics that can help you get started, and delve a little deeper. Also, to find information on specific topics please click on the search icon (spyglass), upper right of your screen, here you can modify your search to specific topics, such as specific drug therapies and lifestyle options. You will find there are many scientific papers quoted here, most have been read and reviewed by one or more of our members which gives us even more insight into AD and various treatments.

When the time is right for you we would love to hear a little more about you, your story, you can post it on the Our Stories forum.

Our members are passionate about preventing, reversing and stopping AD. I think you will find this a place for encouragement, support, advice and a wealth of knowledge as you begin this journey. Ask questions and post your experiences, as someone else may be in your shoes and will benefit from your information.

Find your joy and hope in each new day and each new discovery along your path,
Deb
Deb
Functional Medicine Certified Health Coach
Enrolled in Reversing Cognitive Decline for Coaches
Choose Hope

NF52
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Re: New here? Some Best Practices

Postby NF52 » Sat Jan 19, 2019 6:51 pm

Walt47 wrote:Thank you NF52 for your prompt and informative response. I live in Cuenca, Ecuador and have the country's health plan. I have a follow up with the Spanish doctor, who speaks little English, on the 30th but don't think he's going to respond well to my not following his protocol of bad side effect drugs. Thank you for your kindness and understanding.
Hi again, Walt!
I'm guessing that you're an American ex-pat living in Cuenca, only because Google tells me it's a lovely Unesco World Heritage site of 500,00 people in the Andes Mtns that lots of retirees have discovered as a great place to live. (Sounds a bit like Asheville, N.C. in its relaxed and cultural mountain vibe.) So here's a few more thoughts on ways to find some more answers there. Please note that I have NO connection with any of these people or programs, and no way to tell if they are useful. The first link is just information. The next two are for people who may have specialized ability to help with everything from translation to seeking health supports and making plans for yourself. The last presents itself as a treatment center.

* This is a link to a 2016 article from cuencahighlife. https://cuencahighlife.com/can-good-nutrition-make-alzheimers-better. If you skip the annoying quiz at the beginning, it has some good suggestions on checking your Vitamin B-12 level, eating a Mediterranean style diet, exercise, etc. Mostly things you could find on our forum, but it suggests that there is a community of expats that might be interested in meeting as a support and resource for each other.

* Here is a link http://cotacachihealthchapters.com/sign-up.html to a non-profit that describes itself this way:
We are a not-for-profit, volunteer-staffed organization of expats designed to support and educate the expat community about health-care and preparedness for medical treatment and emergencies.
They have a list of medical translators, at least one of whom lives in Quito, and others may be available to consult in a conference call. They have also presented in Cuenca on senior life planning.

*Wendy Jane Carrell is a bilingual woman who provides senior planning services in Mexico and Equador, according to her website.http://www.wellnessshepherd.com/ Here are some quotes from clients in Cuenca on her website:
I can honestly say, I cannot imagine a better person to help anyone in Cuenca....I was very blessed to have come into contact with Wendy prior to our move to Cuenca, Ecuador... Wendy has great credentials and experience, plus language and cultural skills. Even more important is how she has developed relationships within the community and how much she cares and advocates for seniors....

*And here is what is likely to be an expensive, but possibly useful center for people with early-stage Alzheimer's located near Cuenca: https://www.recoveryfromdementia.com/unique-approach

Deb, one of our wonderful health coach interns, has also welcomed you. Our health coaches may be able to provide some long-distance support if that's of interest to you. They always know that life is a journey and company makes the path easier. Living in Cuenca, it seems like you have already made some great choices to live every day to its fullest in a beautiful setting. I hope each day continues to bring you measures of joy and serenity.

For myself, with a genetically higher risk of Alzheimer's at some point, I find comfort in the Stoics. Here's a quote I saw yesterday from a blog, followed by a quote about stoicism and illness.
No one knows when our time is up. But precisely because we don’t know when life is going to end, the Stoics say that we should live every moment to the fullest, engaging our life in the here and now. If we do things that we don’t enjoy, or are not important, we are wasting the only resource for which people cannot possibly pay us back: time.
So from a feeling of inferiority and impotence and of being somehow ‘less than’ when compared to healthy people, I began to see my value as a person reinstated and judged according to different standards: my resilience, my strength, my dignity, my ability to reframe things.
Stoic Resilience in Face of Illness
Be well, my far-flung friend.
4/4 and still an optimist!


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