Big Pharma bought 23andme

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Plumster
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Big Pharma bought 23andme

Postby Plumster » Sun Jan 20, 2019 8:01 am

It appears that GlaxoSmithKline bought 23andme. American citizens may want to consider downloading and deleting their account. I don't know more than what is stated in this article:
https://returntonow.net/2019/01/09/big- ... hmtTUpVPDw
e3/4 MTHFR C677T/A1298C COMT V158M++ COMT H62H++ MTRR A66G ++ HLA DR

NF52
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Re: Big Pharma bought 23andme

Postby NF52 » Sun Jan 20, 2019 8:50 am

Plumster wrote:It appears that GlaxoSmithKline bought 23andme. American citizens may want to consider downloading and deleting their account. I don't know more than what is stated in this article:
https://returntonow.net/2019/01/09/big- ... hmtTUpVPDw
Thanks for sharing this Plumster,

This is going to be a decision each of us has to make. It does appear that only those users who have agreed to have data shared with researchers (about 80% of users, according to 23&me) will have data shared with GSK. More importantly, both companies affirm (and presumably are legally liable to this promise) to use only aggregate (pooled) and de-identified data. Here's a quote from their July 2018 press release:
https://www.gsk.com/en-gb/media/press-releases/gsk-and-23andme-sign-agreement-to-leverage-genetic-insights-for-the-development-of-novel-medicines/
23andMe customers are in control of their data. Participating in 23andMe’s research is always voluntary and requires customers to affirmatively consent to participate. For those who do consent, their information will be de-identified, so no individual will be identifiable to GSK.

The continued protection of customers’ data and privacy is the highest priority for both GSK and 23andMe. Both companies have stringent security protections in place when it comes to collecting, storing and transferring information about research participants. 23andMe employs software, hardware and physical security measures to protect the computers where data is stored and information will only be transferred using encryption to offer maximum security.
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Re: Big Pharma bought 23andme

Postby thjj » Wed Feb 06, 2019 9:50 pm

Not too thrilled about evil :twisted: Big Pharma getting control of our private data
· • Kim · • ·
ApoE4/4 status known: 2018 | Born: 1969 | Cognitive Impairment: none
Current condition: keto rash; ketone level: 1.0 mmol/L

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MarcR
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Re: Big Pharma bought 23andme

Postby MarcR » Wed Feb 06, 2019 10:48 pm

I want to remind everyone of this excerpt - particularly the last sentence - from our Community Guidelines:
Respect. All posts and private messages should be courteous. Disagree with ideas, not people. You may not attack, insult, undermine, or belittle anyone. This broad prohibition extends beyond other members and this community to the world at large.

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Re: Big Pharma bought 23andme

Postby CoachDD » Thu Feb 07, 2019 2:44 pm

Greetings - jumping in on this subject. . . especially since it is not new news - this happened a while back. While I have BIG concerns about this, I am now suggesting to anyone wanting to research and understand their genetics to still use 23andme for this, but simply create a pseudo name and unique email (without your name in it) exclusively for this situation. Obviously, you'll need to manage/monitor that new email account and guard it from other sources but this will allow folks to remain anonymous. I welcome other thoughts on this - but this is the best way I can think of to avoid the possibility of future issues with your genetic data.
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thjj
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Re: Big Pharma bought 23andme

Postby thjj » Sun Feb 10, 2019 9:43 pm

CoachDD wrote:Greetings - jumping in on this subject. . . especially since it is not new news - this happened a while back. While I have BIG concerns about this, I am now suggesting to anyone wanting to research and understand their genetics to still use 23andme for this, but simply create a pseudo name and unique email (without your name in it) exclusively for this situation. Obviously, you'll need to manage/monitor that new email account and guard it from other sources but this will allow folks to remain anonymous. I welcome other thoughts on this - but this is the best way I can think of to avoid the possibility of future issues with your genetic data.
What a great idea, Coach. I wish I did this last year when I ordered. I had automatically thought that since we're submitting our genetic data, that we're supposed to give them our real names, etc. You're right, who says they need our real name for out genetic data? I even had annoying relatives pop up on my ancestry network :lol:
· • Kim · • ·
ApoE4/4 status known: 2018 | Born: 1969 | Cognitive Impairment: none
Current condition: keto rash; ketone level: 1.0 mmol/L

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Re: Big Pharma bought 23andme

Postby CoachDD » Tue Feb 12, 2019 2:10 pm

Thjj - I have the same wish. . . should've thought of this much earlier when I purchased my own kit. It'll be interesting to see if this truly is an issue or if there are concerns with doing this. My sister is in the process of setting up a fake account and my son already did it too. I assume there are some that can be "found out" with a little detective work. :)
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