Migraines with aura--help!!

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Robin2038
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Re: Migraines with aura--help!!

Post by Robin2038 »

My daughter had another migraine last night and I gave her the ginger in warm water during the aura phase. It was a bit spicy for her but I encouraged her to nearly finish the cup. She only got a mild headache. Last week she was in so much pain she couldn't stop crying. I ordered some ginger supplements (550 mg per tablet) because she was balking at the taste of the ginger drink (she's only 12), but I'm guessing it won''t work quickly enough to impact her migraine. True? The aura has been 10-15 minutes, but if she is out of the house and gets the aura, at least the ginger supplements could potentially help. I'm taking her to Johns Hopkins next week (can't believe they had a cancellation and I got her in so fast! The next appointment was in May :) to a pediatric neurologist who specializes in migraines (and he's a migraine sufferer). But I'll keep giving her the ginger and see if it continues to help, and hope it wasn't just a coincidence. Thanks everyone, especially Geene!
GenePoole0304
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Re: Migraines with aura--help!!

Post by GenePoole0304 »

at the first sign you should take all the ginger powder in water, try adding a little orange juice but the active ingredient is strong. A few big gulps and it is over.

I carry these with me as there have gingerol extract in them, two seems to help but you may need to take more in 15 minutes and they are also quite strong.
http://puremints.com/meltzers-ginger-mints/

If she is drinking milk or having cheese I would stop those as the Calcium to Magnesium ratio is tohttp://www.swansonvitamins.com/swanson-ultra-a ... grams-pwdr
o high 10:1, just take Albion patented magnesium bisglycinate 200mg might help no calcium as it is a Mg antagonist and most migrainers 70% have low Mg levels.
Silverlining
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Re: Migraines with aura--help!!

Post by Silverlining »

Sweet Robin!! And yes, thks Gene, I'm getting my daughter on board with the ginger
Robin2038
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Re: Migraines with aura--help!!--Migraine Summit

Post by Robin2038 »

To fellow Migraine sufferers,

If you didn't see it, there was a virtual "Migraine World Summit" this week at : https://www.migraineworldsummit.com/

I streamed it for free when I could. There were some very interesting lectures by specialists around the world (including my daughter's pediatric neurologist at Johns Hopkins) and you can now purchase all the lectures and notes for about $100. Some talks were ho hum, but a couple were very interesting. There was one lecture by a South African physician/dental, maxillofacial surgeon who had an extremely interesting theory on the cause of migraines and performs apparently very successful surgeries on blood vessels that lie outside the skull (Dr Elliot Shevel). He says his experience with treating headaches as a non-neurologist led him to his "breakthrough" in migraine relief. Has anyone heard of this surgery? Let me know what you all think!

The ginger remedy was also discussed in another lecture, as was Cefaly (the founder presented his findings).
Regards
Robin
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LanceS
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Re: Migraines with aura--help!!

Post by LanceS »

FWIW, still occasionally get a bad aura...it can be really bad if you have to drive at some point. But I used to get them alot more. I could avoid the headache after a while by finding a very dark place, lying down and completely relaxing. I never perfected a version of this appropriate for work or school, but I would imagine you could. That would be my best recommendation. Very dark place, relaxation / meditation.

FWIW... the rest of this is more or less conjecture for what physically may have caused my auras / migraines (outside of stress). It is pretty clear to me that not everyone has the same source for auras / migraines. So it is clear to me that IF this is my cause, it is also clear that not everyone has this cause. It sounds scary... but in the scheme of things, it isn't a terrible thing.

I had a patch over a hole in my heart (between the upper chambers - patent foramen ovale)... which may have been letting in unfiltered blood that went to the brain. When the patch was put in the aura diminished considerably. I had the patch put in because I had a stroke with no identifiable reason why except the hole and after the stroke when I exercised above 140 bpm, I had noticeable problems with light for the next two days. Post patch, headaches almost never (perhaps never) followed. Auras still happen occasionally but not nearly as often as before. No idea if this unfiltered blood thing has anything to do with migraines or not. It was told to me that 25% of the population has these holes between the upper chambers. No idea if that is true or not. I got a saline contrast / bubble test to confirm the hole in the heart. Not sure I would recommend testing for the hole unless someone in your family is having TIAs or similar. Not sure that I would recommend closing the hole just to HOPEFULLY get rid of auras or headaches. Some people have close the hole but gotten no relief. Females with holes in the heart must stay away from birth control as it can throw a clot through the hole and the strokes females can get are usually temporary but involve large portions of the body being paralyzed and are scary.

My daughter has a hole, no evidence of migraine aura yet. No birth control for her. No plan to close the hole. We are hopeful this never becomes an issue for her and don't consider this a problem for her. She also can't scuba... but we all snorkel together and are happy for that.
GenePoole0304
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Re: Migraines with aura--help!!

Post by GenePoole0304 »

I have no idea how expensive this is but it could be very helpful for those who get too many migraines.
you can watch all the videos and patient testimonials and read the research
http://www.reedmigraine.com/faqs.php
GenePoole0304
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Re: Migraines with aura--help!!

Post by GenePoole0304 »

Can Large Doses of Folic Acid Relieve Migraines?

http://www.pharmacytimes.com/resource-c ... -migraines

Migraine is the third most prevalent illness in the world, affecting 1 billion individuals worldwide.

Current medications available for migraines have varying efficacy and significant potential for adverse effects. Research is ongoing to develop safe, effective treatments.

A group of researchers conducted multiple studies exploring vitamin B deficiency as a contributor to migraines. Homocysteine is an amino acid that has been associated with an increased risk of several neurologic conditions, such as migraines.

Vitamins B6, B9 (folic acid), and B12 are involved in homocysteine metabolism. Thus, the research team investigated the homocysteine-lowering effects of vitamin B supplementation and its subsequent effect on migraine control.


The researchers previously tested the effects of 2 mg folic acid, 25 mg vitamin B6, and 400 mcg vitamin B12 supplementation. They found that these doses significantly reduced homocysteine levels and migraine symptoms. Because 1 mg/day is the maximum recommended dose of folic acid, they wanted to determine whether that lower dose would be equally effective.

The study, which was published in The Journal of Headache and Pain in June 2016, found that doses of 1 mg folic acid were less effective than 2 mg folic acid at reducing migraine symptoms.

The researchers selected their trial population considering the fact that more than 70% of patients who experience migraines are females in their peak reproductive years (ages 25-55). The trial included Caucasian females between the ages of 18 and 60 years, with a 5-year history of migraines, a current diagnosis of migraine with aura, and a 1-year history of long-lasting attacks.

They randomly placed 200 patients on a daily regimen of 1 mg folic acid, 25 mg vitamin B6, and 400 mcg vitamin B12. They placed 100 patients on a placebo regimen.

After 6 months, there was no significant reduction in homocysteine levels or migraine symptoms in the treatment group compared with the placebo group. This suggests that folic acid yields a dose-dependent reduction in homocysteine levels and migraine symptoms.

Further research is needed to determine the appropriate doses of folic acid and vitamins B6 and B12 for migraine treatment and prevention.



- See more at: http://www.pharmacytimes.com/resource-c ... EcC8a.dpuf
Starfish77
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Re: Migraines with aura--help!!

Post by Starfish77 »

I con't have migranes, but I find the ideas in these two articles some of the most interesting ideas I've read in a long time. It is amazing that the body can regulate itself from the different sound in each ear without any effort from the subject. What wonderful possibilities this study presents.
Starfish
GenePoole0304
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Re: Migraines with aura--help!!

Post by GenePoole0304 »

yes and how emotional stress can unbalance the system! Keep calm and carry on!

my late father who lived to be 89 lacked the bridge in the brain that communicates with each side of the brain but he lived a great life and it never was a handy cap for him. He was a hobby painter artist who made perspective gadgets to compensate for his lack of natural ability to reproduce 3 dimensional pictures, and by profession he was a jewellery designer/maker who made some of the most beautiful items I have ever seen and I still look in high end jewellery stores and it confirms my belief in his great talent as there always are few that can match his work or it would cost a fortune to reproduce such things today!

http://biology.about.com/od/anatomy/p/c ... llosum.htm
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