Being worked up for bladder cancer...

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Julie G
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Being worked up for bladder cancer...

Postby Julie G » Wed Apr 13, 2016 3:33 pm

We’ve had our share of health scares here. It’s my turn, I guess. (Circ must have tagged me ;))

I’ve got boatloads of symptoms, the most frightening of which is persistent blood in my urine. I’m also positive for GSTM1, rs9642880 (T;T.) My uncle just died of that type of bladder cancer a few months ago. The worst part, as always, is the waiting. I have two tests on 4/26 and will get results that same day. I’m traveling to CA for work from the 20-25th. That will help keep my mind off this crap, I hope… Argh!

circular
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Re: Being worked up for bladder cancer...

Postby circular » Wed Apr 13, 2016 4:03 pm

(((((((((((((((((((((((((((((((((((((((((((((((Juliegee))))))))))))))))))))))))))))))))))))))))))))))))))))))))

Do I ever understand. It's all still fresh in me. I wish I could be there to give you a real, live hug. I'm having a hard time finding words. I'm evidence it can come out okay, a result of some other cause, in spite of all the scary monsters lurking in corners.

I know you need the tests, and I'm sure you've looked at these other scenarios, but for now I'm hopeful this might be an explanation:

Strenuous exercise. Although it happens rarely, it's not quite clear why strenuous exercise may lead to gross hematuria. It may be linked to trauma to the bladder, dehydration [ketogenic diet?] or the breakdown of red blood cells that occurs with sustained aerobic exercise. Runners are most often affected, although almost any athlete can develop visible urinary bleeding after an intense workout.
http://www.mayoclinic.org/diseases-cond ... n-20032338

Then there's the role of mast cell activation in interstitial cystitis, but I don't see that blood in urine is a symptom?

Sending love … I know you'll keep us posted ...
ApoE 3/4 > Thanks in advance for any responses made to my posts.

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cdamaden
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Re: Being worked up for bladder cancer...

Postby cdamaden » Wed Apr 13, 2016 4:25 pm

Sending along my well wishes!
Chris
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Re: Being worked up for bladder cancer...

Postby marthaNH » Wed Apr 13, 2016 4:29 pm

Julie you will be on my mind and definitely part of this thing I do that is a lot like prayer. Good luck, friend.

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KatieS
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Re: Being worked up for bladder cancer...

Postby KatieS » Wed Apr 13, 2016 4:38 pm

Julie, sending healing thoughts your way.

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Re: Being worked up for bladder cancer...

Postby bentkat » Wed Apr 13, 2016 5:06 pm

((((((((Julie)))))))

Be well! We all need you.

Kathryn

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Re: Being worked up for bladder cancer...

Postby Thx4thegenes » Wed Apr 13, 2016 5:28 pm

Hugs Julie. My thoughts and prayers are with you.

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TheBrain
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Re: Being worked up for bladder cancer...

Postby TheBrain » Wed Apr 13, 2016 5:52 pm

((((((((Julie))))))))

I'll be thinking of you and wishing you the very best outcome. I'm holding onto Circ's comment that strenuous exercise might be the cause. Take extra special care of yourself during this time of waiting.
ApoE 4/4 - When I was in 7th grade, my fellow students in history class called me "The Brain" because I had such a memory for detail. I excelled at memorization and aced tests. This childhood memory helps me cope!

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Re: Being worked up for bladder cancer...

Postby J11 » Wed Apr 13, 2016 6:20 pm

Juliegee, best wishes.
I hope the support that you receive from the forum will help you.
Moving from the third person to the first puts things in a very different perspective.

Was your uncle genotyped?
I would be very interested to know whether there is any genetic cancer overlap.

Starfish77
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Re: Being worked up for bladder cancer...

Postby Starfish77 » Wed Apr 13, 2016 6:36 pm

((((((((((Julie))))))))))
We all love our Julie and are hoping the days pass quickly pass quickly until you have an answer. We send all good thoughts
for the very best outcome. We are all with you.
Starfish


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