Sparrow hang in there. Through persistence and good fortune things can get better with docs. I'm on my fourth (4th) primary care doc in less than a year. After my first of these four failed to get three specialist referrals to the specialists before my appointments (with minimum three weeks and multiple reminders to do it), I finally settled on another doctor (all the recommended ones weren't taking new patients). This required me changing insurance plans first. I had the second one for five months and she was quite good and supportive on the CIRS aspect of my journey, but we weren't the best fit for personality, but okay. Then I got a letter she was moving. I just stayed with her office partner for simplicity. Saw her once and she was only fair. Then I got a letter that she
was leaving. Back to the drawing board, which at this point means researching local doctors on the internet and hoping for the best based on very little. But it seems I got a winner! When I told her I was very focused on my brain health due to risk of Alzheimer's, she suggested I get tested for my APOE status
. Oh my, and in a conventional setting! She immediately understood and appreciated my medical needs around other things I deal with that most PCPs are like, 'Oh, well, good luck with that!' She also reassured me without prompting that she was not going anywhere. I nearly burst into tears when I walked out of there, and again as I type this. I don't expect she'll want to do everything I'd like, but I feel confident she'll make a lot of good decisions for me.
So it's a loooooooooong journey, and I'm leaving out many years of convoluted problems with the 'system' before this latest, but this is to say that like so many others, I get what you're talking about, and maybe my story offers a ray of hope
ApoE 3/4 > Thanks in advance for any responses made to my posts.