Let me add that a big problem is getting proper interpretation of the reports that NeuroQuant generates. The first radiologist told me that interpreting them was beyond the scope of his practice; he didn’t even look at them. So I sought out a “second read” from a second radiologist. He knew how to read the one report about the hippocampal volume, but he knew nothing about the Triage Brain Atrophy report, which is where the volumes of various brain structures are reported. Also, both radiologsts’ interpretations of my MRI images were way off compared to what was actually true, based on the Triage Brain Atrophy Report. I’ve reported on the forum what I learned regarding what percentiles based on age and gender constitute atrophy.
Also, Dr. Mary Ackerley offers consultations via phone or Skype for her interpretation of these reports, yet she neglected to mention my cerebral white matter atrophy for some unknown reason. I discovered that myself. Still, I’m very glad I met with her. I have yet to have a good overall understanding of what the atrophy in my brain, especially in my cerebral white matter, means for me now and in the future.
All that said, I’m glad I had the NeuroQuant done, and I’ve learned a lot on my own. At some point, I’ll make another push to find an expert who can help me better understand my NeuroQuant results. Thus far (and on my own), I highly suspect mold toxicity is the cause of my white matter atrophy.
Good luck getting your needs met! I think you are wise to get a baseline prior to starting ReCode.
ApoE 4/4 - When I was in 7th grade, my fellow students in history class called me "The Brain" because I had such a memory for detail. I excelled at memorization and aced tests. This childhood memory helps me cope!