Postby PSu82537%a6r_dnz » Mon Oct 14, 2019 7:38 am
Hello all....
I just wanted to share a few notes from our meetup in Greenbrae on Sunday. It was a beautiful day, and a nice venue with pleasant outdoor seating. We had a total of five people attending. We had conversations over a number of topics. One of our members reported positive results from using a supplement called "resveratrol". Another of our members reported some very good results from efforts to establish a baseline neurological assessment. He had a consultation with a neurologist who compared a recent brain MRI to one taken some time ago, and the neurologist reported no signs of any worsening over the time between the two scans. Putting that together with a hippocampal volume scan from Neuro-Quant which also showed good results, our member reported feeling very satisfied with this baseline, and we celebrated with him. Another of our members reported an interesting experience with a clinical trial for investigation of a new drug. She had applied to, and been accepted into, this clinical trial but before actually taking any of the drug, she learned that the trial had been cancelled because of a discovery or suspicion that it might have been doing more harm than good. While it was disappointing to not be able to proceed with the trial, there was also a feeling that maybe she had "dodged a bullet" by escaping any possible harm that the drug might have caused. This same member reported participation in an online sleep study or sleep quality improvement program, which she is optimistic about. We admired her activist approach to our common concerns. We did a lot of discussion about sleep, and a wide variety among our members on how well we sleep and what we are doing to try to improve in that regard. One of our members described his comparison of the Oura Ring versus the Fitbit for sleep tracking. He felt that the Fitbit was better for general fitness and specifically real-time monitoring during a workout. But the Oura Ring was judged to be a bit better specifically for sleep tracking (at a notably higher cost.) We had a general discussion about the benefits of mutual support, both in the context of our specific group, and also in previous experiences one of our members described with group consultations on other medical problems. We all agreed that the meetup was well worthwhile and we will gather again in another three months.