Unfortunately, I can't make this new time. I look forward to listening to a recording or reading notes about the meeting. I'm sure the meeting will be productive!
So sorry I missed it! I had intended to attend but was in the middle of getting diagnosed with shingles. I hope to attend the next one!
DaleBru wrote:Here is my two cents for a possible name: Alzheimer’sHope (all one word, because the juxtaposition is intended to be a bit jarring for those who believe that there is no hope). In my opinion, part of the stigma about AD is that people don't want to know that they might develop a horrible disease for which there is no hope. Who wants to learn their risk when only utter despair can result?
MagicBean wrote:My one thought here is about the use of the word "prevention." It may be worth looking into whether that will that attract attention of the FDA (probably not, since the new website doesn't sound like it will be peddling supplements). The other concern is whether any language used such as prevention may constitute medical advice? Not trying to be a nay-sayer, but just to raise potential concerns before we travel too far down any one road with titles and whatnot.
Julie G wrote:
Because of our high genetic risk, we are the face of this disease. We are speaking for the almost 6 million Americans who are already affected, and the 14 million who are slated to develop the disease by 2050, if we do nothing to intervene. The pathology that leads to Alzheimer’s disease takes decades to develop. There is currently no cure for this disease, although some prevention strategies appear to mitigate disease progression. The sooner any of us begins working on Alzheimer’s prevention, the better our chances of avoiding the disease. Alzheimer’s prevention, started early, is the best and only chance we have to address this public health epidemic.
1. The group felt strongly that we need a bold name for our campaign that included the words “Alzheimer’s Prevention” either in the name itself or in our tag line. We still need to hammer out the exact name. Please keep brainstorming with us. We also need to develop a logo. Any and all help is appreciated.
“Alzheimer’s Prevention” (name TBD)
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