Calling all Alzheimer's Activists!

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MagicBean
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Re: Calling all Alzheimer's Activists!

Postby MagicBean » Wed Aug 14, 2019 3:09 pm

Mercola is a doctor so he probably is exempt. The other blogs you posted don't have any medicalized language like "prevention" in the titles of their websites, and while we'd need to do a more in-depth search, a quick skim of some of their blog titles say things like "support" and "wellness" etc., whereas "prevention" is a term reserved specifically for medical professionals, at least here in the U.S. I do have some knowledge of this having worked for a wellness website in the past, which was very careful about language for a number of reasons: the law for one, and liability reasons, for another. Anyway, like I said, not trying to naysay but wanted to bring up these points that should be discussed before the brochures are printed!

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Re: Calling all Alzheimer's Activists!

Postby mike » Wed Aug 14, 2019 3:53 pm

Julie G wrote:1. The group felt strongly that we need a bold name for our campaign that included the words “Alzheimer’s Prevention” either in the name itself or in our tag line. We still need to hammer out the exact name. Please keep brainstorming with us. We also need to develop a logo.


How about
logo.PNG


An elephant for memory...
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Re: Calling all Alzheimer's Activists!

Postby Julie G » Wed Aug 14, 2019 4:10 pm

Anyway, like I said, not trying to naysay but wanted to bring up these points that should be discussed before the brochures are printed!

We appreciate your help, Magic Bean. Trust me, we are a long ways from printing anything. We're just in the brainstorming stage and your input is very timely. I, too, was hesitant to use the term "prevention," but our group felt it was time to take a bold stance and pushed to include it. As you're probably aware this is a hotly debated topic. This 2019 paper,Alzheimer's “Prevention” vs. “Risk Reduction”: Transcending Semantics for Clinical Practice summarizes the status quo. Additionally, the CDC itself, has a public health curriculum focused on the primary prevention of Alzheimer’s. I'll attach part of that below. The prevention aspect comes in on slide #20.

I like DaleBru's suggestion of replacing "prevention" with "hope." I also think that we're very safe to focus on "brain health." BUT, as our group kept repeating, do we want to be safe? Isn't it time for a bold stance? And, as those at the highest genetic risk actively working to prevent the disease, aren't we the group to deliver that message? I don't know. Thinking out loud.
Module3-Alzheimers-Disease-Role-of-Public-Health.pdf
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Re: Calling all Alzheimer's Activists!

Postby rrmolo » Thu Aug 15, 2019 5:59 am

This is a suggestion:

AVOID the SLIPPERY SLOPE to ALZHEIMERS or ASS to Alzheimers
It is unconventional, non medical model, inspires questioning, sometimes we slip, nothing is guaranteed

Our logo could also be modern...maybe in tatoo style!

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Re: Calling all Alzheimer's Activists!

Postby SusanJ » Thu Aug 15, 2019 6:38 am

rrmolo wrote:ASS to Alzheimers

:lol:

Needed a good laugh this morning.

On a serious note, if we think about how people might search for information, they might be more likely to type "avoiding Alzheimers" versus "preventing Alzheimers" given the strong, existing messaging that Alzheimer's can't be prevented. So that word "avoid" might be good to slip in somewhere.

Just a quick drive by - hands full at the moment, on many fronts. Good luck with the initiative.

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Re: Calling all Alzheimer's Activists!

Postby JML » Thu Aug 15, 2019 8:08 am

Julie G wrote:What else am I missing?

In our messages, I think we really need to hit hard to educate people that AD takes YEARS to develop. There is hope in that message because it means people have years available to them to work on prevention. If we can convince people that silent changes are happening for decades, we can target younger people (30's to 60's?) with the message that NOW is the right time to make changes. This is not a wait and see condition.
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Re: Calling all Alzheimer's Activists!

Postby ru442 » Thu Aug 15, 2019 10:49 am

I'll throw in a couple:

Citizens for Alzheimer Prevention

Voices for Alzheimer Prevention

And maybe this as a play on APOE, others please take a stab if you think it works (I ran out of adjectives, verbs, and nouns!!):

Alzheimer Prevention Outcome Exchange
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Re: Calling all Alzheimer's Activists!

Postby floramaria » Thu Aug 15, 2019 11:03 am

JML wrote:In our messages, I think we really need to hit hard to educate people that AD takes YEARS to develop. There is hope in that message because it means people have years available to them to work on prevention. If we can convince people that silent changes are happening for decades, we can target younger people (30's to 60's?) with the message that NOW is the right time to make changes. This is not a wait and see condition.

I agree!
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Re: Calling all Alzheimer's Activists!

Postby Julie G » Thu Aug 15, 2019 12:37 pm

So many great ideas! Thank you, all. RU, I really like the idea of including "citizens" or "voices" because that's playing on our strength. Yes, JML and floramaria, we must address the urgency and the very long prodromal period that gives us an opportunity to intervene. rrmlo, I love it- quite memorable! I really like the idea of an acronym. I've been playing with a few:

R.E.A.P: Real Examples of Alzheimer’s Prevention
Reap the benefits of a brain healthy lifestyle today
_____
S.T.E.A.D.Y: Strategies To End Alzheimer’s Disease Yesterday
Slow and Steady wins the race. Get started now for a better tomorrow
____
STEADfast: Strategies To End Alzheimer’s Fast
Remain steadfast against Alzheimer’s disease. Act now for a better today... and tomorrow
____
INSTEAD: Incorporate New Strategies To End Alzheimer’s
Imagine a world without Alzheimer’s. Act now for a different tomorrow
____
INSTEAD: Incorporate Nine Strategies To End Alzheimer’s
Imagine a world without Alzheimer’s. Act now for a different tomorrow

Try to narrow down a top nine (supported by evidence) in our consensus statement to provide a short list of simple strategies.

-Eat a healthy diet
-Exercise
-Optimize sleep
-Manage stress
-Breathe clean air
-Protect your head
-Reduce Glycemic markers
-Optimize blood pressure
-Stimulate your brain

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Re: Calling all Alzheimer's Activists!

Postby mike » Thu Aug 15, 2019 12:41 pm

JML wrote:
Julie G wrote:What else am I missing?

In our messages, I think we really need to hit hard to educate people that AD takes YEARS to develop. There is hope in that message because it means people have years available to them to work on prevention. If we can convince people that silent changes are happening for decades, we can target younger people (30's to 60's?) with the message that NOW is the right time to make changes. This is not a wait and see condition.


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