SusanJ wrote:I have my test results back from my new doctor (Dr. Craig Tanio), they point to CIRS of some sort, and headed off to do more testing next week...
Isn't it fun getting to peer into one's system? But not so fun to have such a need to
Before I forget, I'm going to try the baking soda to get my hsCRP down per
this thread. (
Science Direct article) It showed effects after only two weeks of use. It's so cheap I think it's worth a try, especially now that my choline stores are almost certainly boosted for better acetylcholine functioning. Wouldn't it be fascinating if something so simple could help a lot of CIRS patients?
Congratulations on your hippocampus!
What is your white matter score and which version of NeuroQuant report do you have? I'm curious to compare our white matter vis chronic inflammation. If it helps you feel better, my amygdala is in the 98%ile on the right side and 84th%ile on the left, for a total of 95. The report calls that normal, but I think it's from too much stress. I heard in a good
podcast about trauma that meditation can reduce the size of the amygdala (!). Since it's quite possible that a history of trauma might predispose us to CIRS, that might be worth listening to for some new ideas.
You've tested more than I have here, but we're quite similar. Here are some comparisons if it helps ...
lyme (borderline check)
TGF-b1 (a bit different, normal at 2430 but I think Shoemaker likes it lower?)
C4a (don't have it handy but not off the charts)
high CMV (check for IgG but not IgM)
negative EBV IgM (check)
high EBV VCA IgG (check at 110 ... yours is
very high!)
high EBNA (check at 136 ... yours if
very high)
high HHV-6 [is that what your 'HSV-6' is?] (check at 69.35)
low VEGF (check at 23)
low/normal MMP-9 (check at 231)
normal osmolality (check at 276)
positive MARCoNS (check for Staph Coag Negative-large amount)
I was pretty aggressive with the MARCoNS, at least two maybe three rounds of nasal antibiotics. It just kept uncovering one thing after another there and we didn't want to keep using the antibiotics. I also tried silver. I think the first round of abx may have been useful. Given the proximity of the sinuses to the brain, you might consider being a little more aggressive here, but if you have clear sinus symptoms, then if Biocidin helps them maybe that's all you need to go on.
For some perspective on the EBV, I'm going to copy here some notes I sent a friend once:
Here are my 2/17 results on the heels of years of chronic fatigue, with notes from one of the lab sites and Mayo: …
EBV Ab VCA, IgM = “If positive means a recent infection”, mine was normal <36 …
EBV Early Antigen Ab, IgG = “Hepatitis A, Hepatitis C and HIV antibodies may cross react with this assay” and Mayo says actively replicating, can have “chronic active or reactivated,” mine was 68 High where negative is <9
NOTE the last two … I guess I had reactivation but not a recent infection, if the first two can really tease that out?
EBV Ab VCA, IgG = “Greater than 90% of the normal population sees this,” mine was 110 High where negative is <18
EBV Nuclear Antigen Ab, IgG = “Detectable for life; 90% of the normal population sees this,” mine was 136 High where negative is <18
Here’s the CDC page on this
https://www.cdc.gov/epstein-barr/labora ... sting.html. I think the upshot for me is that I clearly had had EBV at some point, but it couldn’t be proven by labs whether I was active (chronic or reactivated) during my chronic illness years, because the CDC says: “Early antigen (EA)
Anti-EA IgG appears in the acute phase of illness and generally falls to undetectable levels after three to six months. *In many people, detection of antibody to EA is a sign of active infection. However, 20% of healthy people may have antibodies against EA for years.”*
I was also positive for Cytomegalovirus (CMV) but that could indicate past infection. I had some high Coxsackie ones too. Then I had high HHV 6 IgG Antibodies, but my notes there say “detection of IgG antibody in midlife population approaches 100%” (Mayo). HHV is now linked with Alzheimer’s along with other viruses and pathogenic organisms. I’m not sure the labs add much, when we all just need to detox like hell and and adopt an anti-viral and immune regulation supporting lifestyle … whatever that is!
My friend was conveying that a doctor told her that EBV may lead to autoimmune conditions in some, so I found this:
Here’s how
EBV > autoimmune is supposed to work. Interestingly it also says that most people have fended off EBV and people other than teens and young adults may only have had mild symptoms. That supports that EBV Ab VCA, IgG and EBV Nuclear Antigen Ab, IgG would be high in 90% of the population.
ApoE 3/4 > Thanks in advance for any responses made to my posts.
