Surgery/Hospitalization Tips for E4s

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Julie G
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Re: Surgery/Hospitalization Tips for E4s

Post by Julie G »

(((Lilly))) I hate that you're facing surgery. FWIW, that's the same study I linked in the first post of this thread. I did the IV propofol (with a spinal & epidural) and no probs. Meet or talk with your anesthesiologist BEFORE your surgery to plan things out. I'd recommend bringing a copy of the paper.

I'll be sending good energy for your healing, my sweet friend ❤️
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LillyBritches
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Re: Surgery/Hospitalization Tips for E4s

Post by LillyBritches »

Thank you so much, sweetheart! I'm so sorry...I thought I'd perused this thread thoroughly to make absolutely certain I wasn't duplicating the link I posted. :( Something else about which to worry. HA! Girl - that's exactly what I'm going to tell the anesthesiologist. Precisely, in fact: "My friend Julie got the IV propofol-spinal-epidural, no chaser. I'l have what she had." ;) (((Julie)))
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Re: Surgery/Hospitalization Tips for E4s

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I guess a lot depends on whether you are going in electively or as an emergency and whether privately or publicly here in Australia.
I collapsed two weeks ago and was taken to a Hospital 200kms away, (for six days) no one could get there , and i never had time to prepare anything.
As i thought it was something very serious my AD prevention went on the back burner..........After ruling out the heart and having two brain cat scans and an mri and various other tests initially it was thought to be due to narrowing of blood vessels in the brain, however i have since been told these were a normal anomaly...and i have benign paroxysmal positional vertigo.
When i wasnt spinning around i ate the hospital food and was pleasantly surprised, i ate some refined carbs, but there were quite healthy choices, which for a short time i thought wouldn't be too detrimental. Five doses of stemitil seemed to cloud my cognition along with the actual condition. I am since on serc and it doesnt seem as bad, however the condition itself has knocked me both mentally and physically.
Whilst i am very very grateful for the care and attention, if like me you go in as a public patient in Australia , then you have to fit the system, which is under huge pressure and there is very little time for personal idiosyncrasies/medical requirements.
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Julie G
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Re: Surgery/Hospitalization Tips for E4s

Post by Julie G »

(((Paul))) so sorry my friend. You should have let us known. We would have been sending loads of healing energy your way. It's coming now ❤️ Are your symptoms abating with time and meds?
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Re: Surgery/Hospitalization Tips for E4s

Post by circular »

That sounds like quite a case of BPV. I've had it transitorily for years but never collapsed. I assume they ruled out Menieres? Sounds simplistic, but sometimes a dose or two of meclazine for nausea will turn it around. Those type meds are anticholinergic, but may help with acute use?

Lil, sorry you are going through that! I will *definately* have you in mind and heart - same day I should find out if I need thyroid surgery. Yuk.

You'll do great!
ApoE 3/4 > Thanks in advance for any responses made to my posts.
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Re: Surgery/Hospitalization Tips for E4s

Post by Starfish77 »

PGF54,
We are thinking of you and wishing for your recovery. I always enjoy your perceptive comments. I am glad you are
back online with us.
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Re: Surgery/Hospitalization Tips for E4s

Post by Starfish77 »

Lilly,
I'm glad to hear you are taking precautions with your anesthetic for surgery. We want our Lilly well taken care of and back in action. I've had propofol several times. I've always been amazed how clear headed I felt when I woke up. It was very different from other anesthetics that took a period of time before I felt clearheaded. Sending you wishes for excellent communication with your anesthetist and excellent recovery from surgery. ((((((Lilly))))))
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Re: Surgery/Hospitalization Tips for E4s

Post by Starfish77 »

Circular,
Sending you good wishes for your thyroid test results 6/23.
(((((Circular)))))
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Re: Surgery/Hospitalization Tips for E4s

Post by pgf54 »

Thanks for the wishes, they didnt think it was menieres as my loss balance /spinning is for short rather than prolonged periods..and no hearing loss or ear noises......i was positive on the Dix hall-pike manouevre and am hoping the Epleys manouevre i have tried a couple of times after watching you tube has helped. We dont have a specialist/ therapist within 200kms , so had to do it myself, as unsafe to drive and one bus a day and i am too unsteady . Only just ventured out with a stick today for the fist time. Hoping improvement is maintained as it comes very suddenly and quite violently, though i am learning not to move my head quickly which exacerbates it. Time will tell, Thanks again........
Don't wait for your ship to come in, row out to meet it.
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Re: Surgery/Hospitalization Tips for E4s

Post by Stavia »

Oh dear Paul, I am so sorry. I feel its safe for you to do an Epley. Just go really slowly with each step. Each section can be several minutes. Work out which side it is first obviously!
Thank heavens its not serious. I know it feels horrid but it will settle.

(((Lilly)))
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