Issie wrote:Ive known Julie G for about 10 years. We were on a POTS forum together when I first got some of my DX. She helped many of us discover MCAS and get help for it.
Issie wrote:My doc says VIP spray will help. They have reversed brain atrophy with it in CIRS patients. But.......you can't use it until MARCONS is gone.
Issie wrote:There is a Dr. GING that makes a powder that you can put along your gum line and it is helping with cavatations. It's called Oral Health. My doc told me about it. Another well known Lyme doc is using it in his patients too. Says we can avoid surgery with it. You can look him up on internet. He is a Acupuncturist. You have to order direct from him. He will give you his phone number as he wants to decide if it's right for you before he will send it.
Issie wrote:I couldn't use the antibiotic sprays for MARCONS. I was very unfortunate that it caused irreversible ear ringing.
Issie wrote:Then we used silver with EDTA, that didn't work. Now we are using our own concoction, that I made up and we will see. I've never had any of the others break things loose like this does. I'm about to start my 2nd bottle. But I'm not telling yet what it is, as I'm the guinea pig. But it seems to be helping.
Issie wrote:As for VIP, I'm somewhat afraid to try it. I don't do well on anything that is in the glatamate/GABA channels. Everything paradoxes with me and does opposite of what it should. I've also found glycine and things related do create a major Mast cell response. (Glycine is a natural form of or creates VIP. But, with me it went into glutamate and created a sympathetic response and not a calming GABA (parasympathetic ) response as it should have.) The VIP has strong potential for both things to happen. My doc wants my brain better - but we don't want my POTS or MCAS worse. Can't do VIP before MARCONS is gone. Won't work - waste of money.
Issie wrote:I'm so much better than I was. Was really shocked when my Neuro Quant was worse.
There are many different forms of Fungi, including, but not limited to:
There are over 200,000 fungal species and they make up a quarter of the biomass of the earth. There are 100,000 genera of the mold species, but only approximately 80 genera are known to cause illness. Molds, however, comprise most indoor air pollution sickness. Once mold growth has started, each mold colony (mycelium) produces millions of microscopic spores within a few days.
Fungi are divided into four main groups:
Phycomycetes or Rhizopors (black brad mold)
Ascomycetes including Penicillium and yeast
Basidiomycetes which are mushrooms, and
Fungi imperfecti, which include the Aspergillus and some Penicillium species.
TheBrain wrote:My local FM practitioner doesn’t feel comfortable prescribing VIP. If my next urine mycotoxins test shows I’m ready for VIP, I’ll have to go to the very expensive Sonia Rapaport, who is part of ISEAI. The first appointment costs $1600, and that wil hurt. Follow-up appointments are $420 per hour, but they are prorated. If the appointment lasts only 30 minutes, it would cost half that...
But Dr. Ackerley recommended I try VIP for at least 3 months (even with my blood level of VIP being in the normal Shoemaker range). Dr. Bredesen recommends at least 6 months of VIP for those with CIRS, when they are at the stage where they are ready for it.
Issie wrote:I am aware of the new group. But, I trust my doc. Dr. Jennifer Smith. She also has trained with other docs other than Shoemaker. She has such an amazing mind. She can address more than just CIRS and Lyme. She is, basically, my primary. Though she doesn't take insurance. She is a Naturopath. She is in Scottsdale, AZ. I'm very complex and she helps me manage it all. We brainstorm together. It's a team approach.
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