DLP - I appreciate your question so I'm jumping in on this topic as it became apparent that this is the crux of my issues and I've learned a LOT in the process. When I began my journey (after finding out I am 3/4), I honestly thought I had early onset AD. I had so many cognitive issues, I became disabled and eventually had to leave my 28 year career - most recently as an executive in the Healthcare Industry. At its worst, I was unable to sleep more than 2 hours a night and had difficulty doing simple tasks. I wasn't living at all, I was dying - and I knew I had to act fast. I was 50 years old. . .and I was scared to death.
I've researched this extensively and found there is very little support or credible information outside of what Dr. Shoemaker and now http://www.ISEAI.org
has put out there. Be aware Dr. Shoemaker (who is considered THE expert who brought forth much needed attention and treatment for many) is no longer in practice, which may be why many docs are not supporting his research and treatment. I believe he still does consultations and continues to mentor/train doctors on the "Shoemaker Protocol" and I truly believe he has helped many. . .however - he was reprimanded by the MD State Board in 2013 - you can read the details here: https://lymescience.org/rogues/Ritchie- ... plined.pdf
It is because I followed the Bredesen Protocol "Cognoscopy", which includes many of the recommended Shoemaker Protocol tests to identify Type 3/toxins, I was able to identify my core issue - mold toxicity
. Chronic Lyme, MARCoNS and EBV are also present.
I had a MRI w/NeuroQuant (as well as a PET scan - which came back normal) and discovered more than I bargained for - although, the radiologist who read my MRI reported this: 1.) "Unremarkable MRI scan, without evidence of acute infarct or bleed" and 2.) Baseline volumetric measurements do not support a diagnosis of primary messiah temporal lobe based neurodegenerative change." The detailed NeuroQuant Triage Atrophy Report drove me to dig deep into this - I had 11 areas of atrophy
(highlighted in RED). There are very few doctors who can read/understand this report, so I consulted with Dr. Mary Ackerley (who has worked alongside Dr. Bredesen and is the VP of the newly formed ISEAI.org). I am in the process of transcribing her comments (she freely allows you to record the call) and will share some of these details soon. Mold and Lyme were indicated in my results.
There are PLENTY of conventional medical doctors who do not believe mold toxicity or biotoxin illness exists (as well as Chronic Lyme, but that's another story for another day). Those who were willing to have a discussion on this said the only thing they learn in medical school is that symptoms related to mold exposure are from allergies - see "Mold Toxicity Fact Sheet" for a sample language and research offered to the conventional medically trained docs. Many FM docs (NPs, Alternative/Holistic too) believe mold illness is real and it seems there is a real uptick in their education on this.
Mold Illness is real - I am living proof and now being treated for it. Thankfully, my symptoms have improved about 80%, which is huge!! Sadly, my 17 year old daughter also tested positive, so we are currently treating her as well. We are in the process of determining what to do with testing our home and if necessary, what the next steps are for remediation.
Now for the difficult part. . .Dr. Ackerley was brutally honest with me about remediation (which I appreciate). She shared that it is tremendously difficult and expensive to do - and there is NO guarantee you will eradicate it. She said by working now with thousands of patients, she has come to realize it may be best for many to just MOVE
. I also listened to a podcast from a mother of 4 who spent a significant amount of money to remediate and she now suggests to anyone dealing with this to simply sell your home "as is". There are many who do not react to mold - the more challenging issue is to find somewhere that does not have mold or other mycotoxins.
I highly recommend anyone concerned about mold to research further and seek out treatment from the providers listed on ISEAI.org. Dr. Jill Carnahan is a FM doc (who is also on the board) also has personal experience - she has put out many YouTube videos and podcasts on this subject, so check those out.
Tincup also mentioned BulletProof and Dave Asprey - he also put out a movie that everyone should watch called Moldy - here's a link to watch for free: https://moldymovie.com/index
Hope this helps - I'd be happy to share additional research/articles or talk to anyone dealing with this issue, so please feel free to PM me directly. Best of luck on your journey!
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