Karina52 wrote:Since finding out my 4/4 status earlier this year, I have been on an emotional roller coaster. While I have moments of being ok, I am deeply disturbed and freaked out by the prospect of losing my sanity and the essence of ME.
Karina52, I hear you. I was really thrown when I learned my 4/4 status 2 years ago by way of a Promethease report, which provided some particularly alarming statistics. What I have discovered since then is that the statistics vary wildly depending on the study, and some of the studies are just too small to be meaningful.
I agree with Fiver's perspective . . .
Fiver wrote:Remember that about half our risk comes from modifiable risk factors, which we can change. In the past, people would not have been aware of these, so we should be able to do a little better at least.
I bet that the stats are much more favorable for 4/4's who actively take steps to modify their risk factors. Also, ApoE4 is the ancestral gene; it helps to think of it as a mismatch with the modern world, not a defect.
The emotional roller coaster is tough. I'm still on it, but the ride is less wild and terrifying. I have found that when other aspects of my life are going well, I'm more optimistic about my future. When they are not (especially if the challenges are health-related), I'm more likely to slip into that state of feeling doomed. But it does, overall, get easier. Here are some things that have helped me pull through those moments of being "deeply disturbed": going for a walk, having coffee with a friend, watching a comedy, shopping for healthy food, reading up on some aspect of prevention, taking pictures of beautiful things (which seems to help me to focus on the present as well as seek beauty), practicing gratitude (literally taking time each day to contemplate the ways in which I am fortunate), and, of course, checking into this forum (We are not alone in this journey!).