Hey Trevor,Trevor wrote:Hi, I'm a 35 year old male from Canada. I'll try to share what's brought me here.
... I fully expected each of us to come back 3/4 and be ok with that. Well, I was half right. My Mom did come back 3/4. I came back 4/4...
Hopefully that's just the shock of learning this and it wears off. I know my next step should be seeing a doctor and getting some blood tests, but I'm not even sure what I should say and what I should ask for. Thanks for creating this forum.
Trevor wrote:Hi, I'm a 35 year old male from Canada. I'll try to share what's brought me here.
I'm kind of in awe and how proactive and brave you all seem to be. I'm terrified and depressed and feel kind of paralyzed. Hopefully that's just the shock of learning this and it wears off. I know my next step should be seeing a doctor and getting some blood tests, but I'm not even sure what I should say and what I should ask for. Thanks for creating this forum.
BradleyD wrote:I’m just like you in that I’m a 37 year old man, 4/4, great grandmother died of Alzheimers at 84, and grandmother getting it now at age 80. I was crushed mentally when I found out and was depressed for a couple of months. It does get way better after the initial grieving stage. I promise. What fixed me is really knowing my actual odds by age, and focusing on the tremendous amounts of research that are happening and accelerating. With the gene editing that science is doing today, it seems almost certain that in 15-20 years E4 will be a non issue for us. Studies are already being done in humans where E4 is being switched out for the protective E2. Getting brain E4 removed 15 years from now could be like getting a flu shot. It gets better emotionally, trust me, and since we know our status, we can be the first ones in line when this this thing is finally cured. Until then, it gives you the gift of appreciating each day of your life a little bit more.
1. Where should I ask questions? haha. But really, I don't want to clog things up or bore people.
What's a good way to contribute to the community? I'd like to add to things but being so new, I feel like I have little to offer that none of you already don't know.
How should I go about getting tests? I read the first two chapters of The End of Alzheimer's today, but leafing through the rest of the book I found a list of things to be tested. My problem is I haven't seen my doctor in years and he's kind of a grump, so I'm worried about the implications of me coming in, at 35, with a list of things to be tested. Is that even a reasonable request at my age? I know the book suggests starting to get things checked in your 40s, would I be jumping the gun doing that now, even as a 4/4?
At my age of 35, should I be experiencing any signs of problems already? Like I said in my first post, I have already been kind of paranoid about feeling me losing a slight step in the last couple years. I know Alzheimer's usually manifests fully in it's 60s-70s, but is it a case where I should be expecting slight declines now?
My APOE4 test was done by 23andMe, but after I got the result, I ran their raw data through a service site called Promethease and saw this message:
"Possible false positive"...Should I get a retest or is this just wishful thinking? Also, is there anything else I should get tested that hasn't been covered? Something for early AD?
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