Our Team 2017-01-01T19:39:14+00:00

Our Team

Our team is comprised of an all volunteer staff of grassroots APOE-ε4 activists and advocates working together to fulfill our mission statement. Our work would not be possible without their dedication and hard work.

Julie Gregory, Founder/President

Julie (Juliegee) learned that she was an APOE-ε4 homozygote on the cusp of her 50th birthday in 2012. Terrifyingly, she was experiencing symptoms of cognitive decline at the time. In an effort to find support and help, she banded together with other E4 carriers on the 23andMe forums. They soon realized that the medical community was woefully lacking consistent, evidence-based, actionable information for their population. The most frustrating part was the often wildly contradictory advice directed to their community. Along with several other members, Julie founded ApoE4.Info, Inc. in an effort to find answers. Julie is trained as a marriage and family therapist and has focused much of her professional career on helping families; primarily, advocating for children. She’s now using her advocacy skills for the E4 population; connecting researchers and carriers of the allele. Her story, and the story of the group was briefly covered in this CNN article. Julie shared her personal journey, richly interwoven with the history of ApoE4.Info, Inc., at a talk given at The Buck Institute for Research on Aging. She works as a consultant for MPI Cognition advocating for the APOE-ε4 population. Julie lives with her husband (and cat) on the shores of Lake Michigan. They have one grown son on his way to becoming an airline pilot like his dad. 

Susan Jesuroga, Vice President/Moderator

Susan (SusanJ) learned of her APOE-ε4 heterozygote status in 2012 after a new doctor suggested she do genetic testing to better understand some health challenges. Her father had Alzheimer’s disease, and after having witnessed his devastating decline, she wants to do everything in her power to prevent others from experiencing that pain. After 30+ years working at the intersection of science and computer science, she gained strategic planning, supervisory, project management, community liaison, grant writing and budgeting skills. Now retired, she intends to mix her career skills with her lifelong interest in medicine to put medical research into an action. Given the pace of research and understanding the power of computers, she believes we can make a difference in THIS generation. When not deep in PubMed, Susan enjoys photography, painting, playing the piano, bass guitar and singing with the community choir, hiking with her husband and dogs, and learning about the history of the American West. She is currently the president of the local history museum.

RBK, Treasurer

RBK lives in Oklahoma with her three children. She practices tax and estate planning law and works with many non-profits, both as clients and as a serving board member. Her mother died of “dementia” at the age of 57. Her paternal grandmother died of Alzheimer’s late in life, and her father is now suffering with the beginning of symptoms late in life. Her family practice doctor ordered testing knowing that, with her family history and her undergraduate degree in health and sports science, she had a focus on a healthy lifestyle as a preventative form of healthcare. It was through that testing that she learned she was a ApoE4 heterozygous carrier. Thankful for finding this online community, she embraced the kind, open, and amazingly intelligent nature of its members. She loves road trips with her children, national parks, hiking, running, cooking, hammocks, and reading.

Chris Woods, Secretary/Moderator

Chris (Thumperama) is an APOE-ε4 homozygote. He is the co-founder and CTO of the Live Expert era of ClairVista, the world’s leading video chat customer service system. He learned of his E4 status while helping his mother interpret her Berkeley Heart Labs report which contained a genetic test for her ApoE status (which was ordered unbeknownst to her.) Some quick research on the topic left him devastated, but curious. His interest in the ApoE4.Info community is both about controlling his destiny, and helping his parents, siblings and three children.

Russ Conser, Board Member

Russ loves working with brilliant and creative minds to solve big and seemingly impossible problems. An engineer by training, he just retired from a 30-year career at Shell where he most recently led the global GameChanger innovation program. He has deep experience in vetting, investing in, and plotting strategies for successful development of leading-edge technological innovation – especially ideas that defy current paradigms. Russ has learned that paradigms sometimes hide false assumptions that are best challenged by combining systemic thinking with real experimental data. Russ discovered that he was an APOE-ε4 heterozygote in 2011 when confronting his father’s rapidly progressing neurological illness (also a heterozygote.) Playing the role of guinea pig for his Dad, he applied his insights on navigating the world of contrarian innovation to radically improve his own health via changes to diet and lifestyle – a journey that humbly still continues. Russ has moved on from Shell to engage more deeply with entrepreneurs focusing on breakthrough innovation at the intersection of energy, water and food systems.

“RichardS,” Board Member

RichardS is a behavioral neuroscientist and a licensed psychologist with a specialization in neuropsychology. His post-doctoral fellowship covered both dementia and the cognitive effects of substance abuse. His work for the past seventeen years has focused on behavioral genetics. RichardS has a personal stake in working on the E4 dilemma as he has family members who have suffered with both dementia and vascular disease. His father, who was heterozygous for APOE-ε4 died from Alzheimer’s as did his mother. RichardS’s mother-in-law and her mother and grandmother all died of dementia. Heart disease also runs in his family, another E4 related risk. He hopes to learn from others and share his knowledge so that all at risk can have long health-spans.

Marc Rouleau, Board Member/Moderator

Born in 1962, Marc (MarcR) is heterozygous for the APOE-ε4 allele. His heterozygous parent, born in 1940, has had heart disease since 1993 and first noticed impaired memory symptoms a decade later. One of Marc’s five children is also heterozygous. Marc is an independent investor who retired from salaried work as an IT executive in the telecommunications industry in 2012. Marc serves on the boards of two other companies. He lives in southwestern Washington State with his wife and daughter and enjoys hiking and backpacking.

“Stavia,” Board Member/Moderator

Stavia is family physician working in a busy medical practice. She learned she was an APOE-ε4 homozygote in 2014. “I rapidly found that my medical degree left me totally unprepared for this challenge.” Stavia credits the forum for bringing her up to speed on cutting edge prevention strategies for E4 carriers. She describes the community as being comprised of a remarkable collaboration of fine minds and dedicated members. She philosophically prefers to take a position of looking at the big picture and favoring a path of moderation in all things. The strategies she currently employs are keeping BMI healthy, exercising (boxing & weightlifting,) learning to play the piano, working as a physician, prioritizing sleep, practicing mindfulness meditation, social engagement with family and friends, and eating a plant-based whole foods diet with fish to maximize micronutrients. Stavia lives with her husband and two dogs. Her two sons are grown and thriving in their careers.

“Gilgamesh,” Founder/Moderator

Gilgamesh found out he was an APOE-ε4 homozygote around the age of 50. It was a completely unexpected discovery, but it helped explain the increasing frequency of “senior moments” he had begun experiencing at a not so senior age. His frustration with the lack of information about treatment for dementia and the other health problems for which APOE-ε4 carriers are at great risk led to the collaborative founding of the ApoE4 community and website. He firmly believes that with the right level of funding and effort, the dementia, heart disease, and all the problems associated with APOE-ε4 can be prevented or effectively treated within a decade. Gilgamesh teaches in the humanities, and serves on the board of directors of two other non-profits, one of which involves health and aging. In his spare time, he plays in a jazz and rock band, and enjoys hiking and spending time in nature.

“Ski,” Founder

Upon finding out he was an APOE-ε4 homozygote, Ski soon realized that there was a mountain of information out there that needed to be shared collaboratively. A place was also needed where people could find support and comfort among others with similar concerns. Along with the other founders, he contributed his professional skills to build the ApoE4.Info website. As a software developer, Ski is particularly thankful for finding out his APOE status so he could begin utilizing preventative measures early on.

Terry Traver, Resident Hacker

Terry (Teezer) learned of his APOE-ε4 heterozygote status in 2011 after signing up with 23andMe. It was expected, because his father died with AD in 1998. Terry is retired from a career in computer programming, systems design, software development, process engineering, technical writing, and buzzword protocols. He is married to a former Registered Dietitian who feeds him lots of broccoli and thinks that he’s a hypochondriac.