If you want to compare notes on EBV and/or insomnia, feel free to PM me.CoachDD wrote: I am sorry you are dealing with this too.
Search found 153 matches
- Wed Feb 28, 2018 8:33 am
- Forum: Getting Started
- Topic: Thoughts on Disclosure (Who have you told?)
- Replies: 35
- Views: 12945
Re: Thoughts on Disclosure? (Who have you told?)
- Wed Feb 28, 2018 8:24 am
- Forum: Getting Started
- Topic: Thoughts on Disclosure (Who have you told?)
- Replies: 35
- Views: 12945
Re: Thoughts on Disclosure? (Who have you told?)
We need to participate, improve privacy laws legislatively and be vocal. Being silent won't help. If I'm going to go down in a forgetful haze in my later years, I'm at least going to go out making noise about solving this. If not for me, my kids or someone else. I love this attitude! I would like t...
- Tue Feb 27, 2018 10:51 pm
- Forum: Getting Started
- Topic: Thoughts on Disclosure (Who have you told?)
- Replies: 35
- Views: 12945
Re: Thoughts on Disclosure? (Who have you told?)
I am so happy you posted this question - it is quite timely for me. Welcome to this site, CoachDD. I am happy I posted this question too. I have discovered that this journey of learning about our genetic risks is profoundly overwhelming and/or life-changing for many of us. There are experts out the...
- Tue Feb 27, 2018 9:54 pm
- Forum: Getting Started
- Topic: Thoughts on Disclosure (Who have you told?)
- Replies: 35
- Views: 12945
Re: Thoughts on Disclosure? (Who have you told?)
the more we share, participate in research, expose our data, compare notes and assist in the cure, the faster humanity will get there. Dfmcapecod, I couldn't agree more! I read that 23andMe is not currently pursuing ApoE research. I don't know why or if this is still true, but I was definitely disa...
- Tue Feb 27, 2018 9:10 pm
- Forum: Our Stories
- Topic: new from Wisconsin
- Replies: 8
- Views: 3055
Re: new from Wisconsin
Welcome Bwaters! I am impressed by all the changes you have already made! I also ran my 23andMe data through Promethease and learned that I am homozygous for H63D, the mild form of hereditary hemochromatosis. HH was already suspected as a possibility due to a slightly abnormal iron study about a dec...
- Mon Feb 26, 2018 8:45 pm
- Forum: Getting Started
- Topic: Thoughts on Disclosure (Who have you told?)
- Replies: 35
- Views: 12945
Thoughts on Disclosure (Who have you told?)
I would love to have a discussion about disclosure of ApoE4 status. There are clearly significant downsides to disclosure: impact on family members (who may not want to know their genetic risk), implications for insurance (medical as well as long-term care), concerns about employability, fear of bei...
- Mon Feb 26, 2018 5:49 pm
- Forum: Our Stories
- Topic: I’m new here
- Replies: 4
- Views: 2228
Re: I’m new here
Hi Rose! You will find that there are many of us here who share your "luck." I'm glad you found us :) I am in my 50's and learned that I was 4/4 just over a year ago and took the news quite hard. I too was concerned about my brain fog. However, a series of lab tests in the past year have u...
- Fri Feb 23, 2018 11:33 pm
- Forum: Prevention and Treatment
- Topic: How strictly do you adhere to a prevention lifestyle?
- Replies: 40
- Views: 16705
Re: How strictly do you adhere to a prevention lifestyle?
I love this question as well as reading all of the answers! My short answer: This is a work in progress! My current diet is pretty decent, but I started heading this direction well before learning my 4/4 status (Dec 2016). I have no forbidden foods except wheat (which I stopped tolerating several ye...
- Thu Feb 22, 2018 9:53 pm
- Forum: Our Stories
- Topic: Hello! I'm a brand new 4/4 member, scared but relieved and grateful to find you all!
- Replies: 29
- Views: 10840
Re: Hello! I'm a brand new 4/4 member, scared but relieved and grateful to find you all!
I have taken a bit of a break from figuring out how to manage, how to have the best chance at staving off AD. So now I am re-reading all these terrific suggestions to take steps such as having levels tested, getting familiar with the Bredesen Protocol, lowering cortisol level, searching out studies...
- Mon Feb 19, 2018 6:49 pm
- Forum: Our Stories
- Topic: Hello - Autoimmune to APOE story
- Replies: 6
- Views: 2473
Re: Hello - Autoimmune to APOE story
Hi Cleo. I am a huge fan of Izabella Wentz and watched her entire docuseries. :) Her Root Cause book is a brilliant introduction to functional medicine. I believe that the changes you are making while following her approach will go a long way toward mitigating the risks that come with being e4/e4. I...