TheBrain wrote:The end goal is to have a healthy gut and an expanded diet with at least some of my food sensitivities clearing once and for all.
TheBrain wrote:I've been trying to heal my gut for years. It's become even more imperative since learning my ApoE4 status.
I finally have a possibly game-changing gut-related diagnosis! I recently signed up for a three-month online GI Restoration program with a clinic of naturopathic gastroenterologists. The doctor I’m working with directly is Dr. Lauren Steinman, but all three doctors review together the cases of all the patients. Also on staff a nutritionist/mindset coach.
On Monday, I did a breath test for small intestinal bacterial overgrowth (SIBO). I got the results today. I have Hydrogen Sulfide SIBO. It’s a chronic bacterial infection of the small intestine. The overgrown bacteria produce hydrogen sulfide gas, hence the name. Many cases of IBS are actually due to this and other types of SIBO.
(If anyone's interested, I can explain how this diagnosis was determined, based on current breath testing. The recognition of this type of SIBO seems rather new, maybe even cutting edge.)
This finding points to a sulfur sensitivity or difficulty in processing sulfur. I don’t yet know if this is temporary (and will heal after I complete my treatment protocol) or permanent (but manageable somehow). I plan to look into sulfur SNPs.
It’s disappointing to know that I had a SIBO breath test 5 1/2 years ago that showed this exact same pattern of Hydrogen Sulfide SIBO. Unfortunately, my results were interpreted as negative (i.e., normal). Also interpreted as negative was a SIBO test I did two years ago (but the testing period was too short to show the pattern).
Ultimately, this is very good news. The treatment won’t be fun, and I'm trying to figure out what I'll be able to eat. I'm already on a mildly ketogenic paleo autoimmune protocol (AIP) diet. I also avoid my many food I'm sensitive to. Now I'll have to reduce FODMAPs and foods high in sulphur. I’ll get clarity soon. The end goal is to have a healthy gut and an expanded diet with at least some of my food sensitivities clearing once and for all.
LA18 wrote:TheBrain, I’m sorry to hear that you have SIBO, but glad you were able to get an accurate diagnosis. I am definitely interested in hearing more about the testing you did, as I have unrelenting SIBO (classified as methane dominant). I have been trying to get rid of the overgrowth, which, in my case, is likely due to a motility problem, for years. Eating low FODMAP has reduced my symptoms, and I’ve also found Atrantil, which is designed to treat methane-dominant SIBO, to be quite helpful. But I still have flares whenever I eat anything that is even remotely fermentable. I wonder if sulfur could be an issue for me as well.
SusanJ wrote:TheBrain wrote:The end goal is to have a healthy gut and an expanded diet with at least some of my food sensitivities clearing once and for all.
Fingers and toes crossed for you to find the right treatment that works. You are so persistent and it pays off!
Magda wrote:I am sorry you are going thru this! I had SIBO- the same kind- i successful eradicated, however, from time to time I retest, usually with 3h long breath test just to make sure SIBO does not come back.
The most challenging part with SIBO is figuring out why is it there on the first place, looking for the cause if the key of successful treatment. Dr. M. Pimental (an expert i this space: http://bio.csmc.edu/view/3817/Mark-Pimentel.aspx) says 80% of cases is due poorly functioning migrating moto complex, the question is why is poorly functioning ?
Please let me know if you would like more details or resources.
P.S. I tried the diet- very limiting- I think is worth trying if you want to mitigate symptoms but I do not think the diet itself will eradicate SIBO (I might be wrong).
TheBrain wrote:Let me add that Dr. Nigh recommends that people with hydrogen sulfide SIBO take Epsom salt baths. Epsom salt is magnesium sulfate, which is the form of sulfur the body needs for many functions. He recommends using 4 cups of Epsom salt in hot water (as hot as one can tolerate because one's skin should be reddish, so it can better absorb the magnesium sulfate). Take this bath for 20 minutes, 14 days in a row. After that, only 2 or 3 times a week is necessary. The purpose of these baths is to increase the body's sulfate stores so it doesn't overgrow the bacteria that produces hydrogen sulfide gas.
I'm following the protocol that I'm being given at the virtual clinic; however, I'm adding in the Epsom salt baths.
Lastly, Dr. Nigh doesn't use herbal antibiotics (or pharmaceutical antibiotics). He finds that with his protocol he doesn't need to take extra steps to eradicate the overgrown bacteria that produce hydrogen sulfide.
Magda wrote:I apologies for the pause in communication. I had a super busy the end of a semester at school! A lot of studying!
How is your protocol going?
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